Posted 13 March 2007 - 10:13 AM
Diagnosed with lupus, Scleroderma, Raynaud's, and ILD.
Posted 13 March 2007 - 10:53 AM
For the personal hugs we all need from friends, I schedule at least one lunch a week out of the house with a friend. They are more than willing to come pick me up if I don't feel like driving.
Of course, for more "feel good", I volunteer for ISN. That's been rewarding in oh so many ways!
Hope you find something and that it is something you enjoy. Just don't take something to be working, find something that you enjoy doing and pays. What a deal that is!
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 13 March 2007 - 01:28 PM
Posted 14 March 2007 - 03:00 AM
I have scleroderma and work part-time, which suits me well. I need to work, since like you I have lots of medical bills to pay. My hours are 8:30 am - 1:00 pm so I get the afternoons free to relax and take my son to his after-school activities.
Best of luck in finding your dream job!
Posted 14 March 2007 - 05:44 AM
Now I work part time doing computer stuff outside of the home and it is SO much better. Someone mentioned that they work until 1 or so, and I think that it is important to have that time to recuperate from fatigue and also still have energy enough to get in a little excercise.
Posted 14 March 2007 - 10:16 AM
There are different auction sites, and for about 4 years I worked on a lesser known one to make enough to pay for medical bills and the property taxes each year. My husband has a full time job, so it's not as much of a strain on me as for some out there to make ends meet, which is good since my health went south quickly last year and has taken me away from "business" for almost a year now. Even if a person receives SSD, you can make up to a certain amount each year and still receive a full monthly check, but I don't know the exact amount for this year. Last time I checked several years ago, it was over $11K, and since my earned income was much lower than that, it wasn't a problem at all.
I don't know about your current source of income, so you would want to gauge whatever you do by that--especially if it could become a legal problem due to $ amount earned and having to report to whatever agency. If you would like me to send you a PM to give you some details about what I've been doing, just let me know. Everyone has their own niche, so hopefully you will find yours quickl!
Posted 15 March 2007 - 02:14 AM
Send me PM I'd love to hear the details what you've been doing. Great! I appreciate it.