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Biomarker for Diffuse Scleroderma skin has been discovered!


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Toe Ulcer


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#1 scampie5

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Posted 04 August 2012 - 01:35 PM

Hi, does any one have a picture of a toe ulcer? I think I may have one on the top of my toe. It's a round red ring on the outside and a cream colour inside the ring. Well I think it's creamish, can't get that close to see it.:lol:

Many thanks, Lynn

#2 Joelf

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Posted 05 August 2012 - 05:52 AM

Hi Lynn,

Sorry to hear that you've developed a possible toe ulcer; thankfully digital ulcers are something with which I've not suffered and I'm hoping that dubious pleasure will be postponed indefinitely! ;)

Kind regards,


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#3 Amanda Thorpe

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Posted 05 August 2012 - 01:52 PM

Hello Lynn

Can you upload a picture of your toe? Not that I am an ulcer connoisseur but I'll have a look! My understanding is that a leg ulcer is the loss of skin, below the knee on the leg or foot, which takes more than 6 weeks to heal, an area where the skin has broken down and you can see the flesh underneath. The key to it being an ulcer is the loss of skin and length of time it seems. Odd that the term leg ulcer includes below the knee, in other words, the foot.

There are 2 types of leg ulcers venous and arterial, I have venous which apparently are better to have than arterial (?), having said that you can get a combination of both, oh joy! Beware of the usual treatment for venous ulcers, compression bandages, they are a no-no for people with scleroderma according to one of my scleroderma experts. Pity that as it's the only treatment for them! :emoticon-dont-know:

Mine (left foot, right foot) have been with me for well over a year and they are extremely painful, the one on my right foot was just about to close and was going to be dressing free for the first time in months and then within 2 weeks opened up massively and never got free of the bandages! Three times a week the district nurses come and change the bandages and it's been weird and difficult to realise that this could be a part of my life for a long time to come...

I hope the unwanted visitor on your toe is not an ulcer. Is it open and could it be calcinosis?

Take care.
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#4 judyt

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Posted 05 August 2012 - 04:23 PM

Well, goodness me Amanda, that is the first I have ever heard of compression being unsuitable for venous ulcers if one had Sclero!! In fact the person who diagnosed my scleroderma was the Prof. at Auckland Hospital Vein Clinic.

As you have heard ad nausem from me, I have put up with venous ulcers for years on end but I have (touch wood) been free of them totally since I started wearing thigh high compression stockings about 18months to 2 years ago. They are very expensive NZ$235.00 per pair and I get 2 new pairs every 6 months, and they are a mission to get on and off but I am afraid to stop wearing them because who knows what might erupt if I did stop.

I know that the people you see there in the UK are experts as against our Jack of all Trades guys but in my experience the compression advice has worked.

As for Lynn's eruption it could be one of any number of things from a corn to a callous to a calcinosis or ulcer. A pharmacist should surely be able to give an opinion.

Best wishes to Lynn
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#5 Amanda Thorpe

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Posted 05 August 2012 - 04:30 PM

Hello Judy

Yep, point blank refused it. Mind you I wonder if it's because of my heart condition, I never thought to ask as even the district nurse took one look at my legs and said no to them. I'll try and remember to ask next time I am at the Royal Free.

I didn't realise you had to wear the stockings 24/7 and they were thigh high! It's going from one set of bandaging to another but at least they work for you and that's all that matters.

Take care.
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#6 judyt

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Posted 05 August 2012 - 04:43 PM

Well, no, I wear them whenever I am out of bed!! 12 or 14/7 is a better description. That is why it takes me 30 to 45 minutes in the morning to get dressed!!! A big bother to others in the family who would like to get going sooner.

Judyt

#7 scampie5

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Posted 06 August 2012 - 08:58 AM

Well, no, I wear them whenever I am out of bed!! 12 or 14/7 is a better description. That is why it takes me 30 to 45 minutes in the morning to get dressed!!! A big bother to others in the family who would like to get going sooner.

Judyt


Hi thanks for your replies. I cannot get a photo of it; however I am at the specalist tomorrow and will ask him. It's a red circle and a cream colour on the inside of the circle.

I will keep you informed. Lynn

#8 Amanda Thorpe

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Posted 06 August 2012 - 02:06 PM

Hello Judy

I spoke to the district nurse today and she explained that here compression bandages are used first whilst the ulcers are still there and the nurses come in and apply these dressings. Once the ulcers have gone you move into compression stockings that you put on yourself and wear for a set amount of hours each day to keep the ulcers at bay.

Is that what you had, bandages then stockings?

Take care.
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#9 judyt

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Posted 06 August 2012 - 03:37 PM

Yes Amanda, I guess that is right, although I can't really remember using bandages much. I used to have a tubular compression bandage some of the time. I was looking at your photos a day or so ago and was wondering how on earth you cope :emoticon-dont-know: . I have to say I never have had anything so extensive as you have.

What I used to do when necessary and I was wearing knee high compressions was to do the dressing, then because the knee hi's were open toe, I could put my foot and leg into a plastic bag, pull the stocking over (carefully!) then remove the plastic bag through the toe. You need to be very careful not to get the bag tangled around your leg or you can't get it out, and the dressing needs to be well fastened down around the edges to prevent it rolling off.

You talked about one outbreak being almost healed then erupting again. I would have started using compression stockings at the stage where it was nearly healed, but then again if somebody had told me not to, it would have been a different story. I still had a small healing area around my ankle when I started using the thigh highs and used the same method with the plastic bag. Since that healed I have been a new woman!!!! :emoticons-yes: Apart from the effort of putting them on and off each day.

Judyt

#10 judyt

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Posted 06 August 2012 - 04:59 PM

Hi Amanda again,
I keep thinking about those photos of your ulcers and want to ask you if you are or have been on antibiotics lately? I know that you said that the red areas around the eruptions are Stasis Dermatitis/Eczema (depending on which hemisphere your nurse trained) but when my ulcers got looking like that although the nurses were unconcerned my general practitioner demanded they give me low grade antibiotics for a long time (like several weeks).

I know antibiotics cause Thrush but I was taking daily probiotics at the same time and eating plenty of real yoghurt (not pretend kiddies stuff). Thrush is easier to treat than ulcers too.

I have to say that the antibiotics made the difference. Along with decent compression and regular rest with feet up (which I am confident you get).

I know that I have no medical training and still know nothing about anything but personal experience does help and I haven't burnt the potatoes since we moved into our new house so I must be doing something right.

Judyt

#11 Amanda Thorpe

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Posted 07 August 2012 - 01:08 AM

Hello Judy

They did a swab and they have some bacteria that isn't actually an infection (?) so I don't need antibiotics (?) but it could become an infection(?). Something like that! All I know is no infection no antibiotics presently. They did give me an antimicrobial wash but I appear to be allergic to it.

The stasis eczema is much better now provided I leave it alone and don't have a good scratch because, boy oh boy, does it bleed!

Um, burnt potatoes reference??

Take care.
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#12 judyt

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Posted 07 August 2012 - 03:52 AM

I have no medical training and I can't even boil potatoes without burning them, so what would I know about anything??
Judyt

#13 scampie5

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Posted 07 August 2012 - 02:38 PM

Saw Specalist today he lanced the toe but said it may turn into a ulcer and to watch the redness around the middle that it doesn't get bigger and looking at it tonight I think it has. I think when he lanced it some pus came out so will just have see how it goes will keep you informed hoping it won't turn into a ulcer. love Lynn xxxthank you for all your replies.

#14 Amanda Thorpe

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Posted 07 August 2012 - 03:29 PM

:lol: :lol: Judy! You funny lady!
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#15 Amanda Thorpe

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Posted 07 August 2012 - 03:38 PM

Hello Lynn

I hope it doesn't ulcerate either! Keep a close eye on it and if you have to bandage it make sure you use dressings that the air can get through. I say if because I don't know if you should.

Take care.
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#16 miocean

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Posted 07 August 2012 - 08:27 PM

I have been very fortunate not to have any ulcers but I do know something about high dose antibiotics and thrush. After my kidney transplant when I was on very high dose antibiotics I also had a prescription mouth rinse I had to use a couple of times a day. It was the oral rinse form of Nystatin. I didn't have any problem and when my dose was lowered it was discontinued.

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#17 scampie5

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Posted 08 August 2012 - 01:58 PM

Saw my specalist yesterday and asked him about my toe he thought it was infected and lanced it however had to go to doctors today as it didn't look good and doctor said it is a bunion that has got infected but I never had a bunion there? Anyway got antibiotic so hope that works. Lynn

#18 Amanda Thorpe

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Posted 08 August 2012 - 02:54 PM

Hello Lynn

A bunion? I thought they were bumps on the side of the great toe joint? As I am not medically trained...what do I know! Either way I hope the antibiotics do the trick.

Take care.
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