Still here...
Started by
Sweet
, Aug 08 2012 01:30 PM
10 replies to this topic
#1
Posted 08 August 2012 - 01:30 PM
Hi All,
Just wanted to apologize for being MIA. I'm still around, but find it difficult at times to keep up with all that is required of me in life. Healthwise, I've had ups and downs, but all in all I'm doing OK.
Big shout out. and warm welcome to all the new members I've missed personally welcoming to our sclero family. And to all you oldies but goodies, I do hope you've been doing as well as can be expected and then some!
Just wanted to apologize for being MIA. I'm still around, but find it difficult at times to keep up with all that is required of me in life. Healthwise, I've had ups and downs, but all in all I'm doing OK.
Big shout out. and warm welcome to all the new members I've missed personally welcoming to our sclero family. And to all you oldies but goodies, I do hope you've been doing as well as can be expected and then some!
#2
Posted 08 August 2012 - 01:58 PM
What she said!
#3
Posted 08 August 2012 - 02:31 PM
Hello Sweet
Nice to hear from you and I hope we hear more! Your knowledge and experience of scleroderma and other autoimmune conditions is invaluable as is your willingness to share it along with you encouraging demeanour.
Take care.
Nice to hear from you and I hope we hear more! Your knowledge and experience of scleroderma and other autoimmune conditions is invaluable as is your willingness to share it along with you encouraging demeanour.
Take care.
Amanda Thorpe
ISN Sclero Forums Assistant Manager
ISN Video Presentations Manager
ISN Email Support Specialist
ISN Blogger
ISN Liason for Scleroderma Society UK
ISN Sclero Forums Support Specialist for Scleroderma Society UK
(www.sclerodermasociety.co.uk.)
International Scleroderma Network (ISN)
ISN Sclero Forums Assistant Manager
ISN Video Presentations Manager
ISN Email Support Specialist
ISN Blogger
ISN Liason for Scleroderma Society UK
ISN Sclero Forums Support Specialist for Scleroderma Society UK
(www.sclerodermasociety.co.uk.)
International Scleroderma Network (ISN)
#4
Posted 09 August 2012 - 05:26 AM
Hi Sweet,
How lovely to hear from you and I'm pleased that your health seems to have settled down for the present.
I've missed your valuable contribution to the forums and look forward to reading your knowledgable and helpful posts again.
My best wishes,
How lovely to hear from you and I'm pleased that your health seems to have settled down for the present.
I've missed your valuable contribution to the forums and look forward to reading your knowledgable and helpful posts again.
My best wishes,
Jo Frowde
ISN Sclero Forums Manager
ISN News Guide for Scleroderma Medical News
ISN Chat Host
International Scleroderma Network (ISN)
ISN Sclero Forums Manager
ISN News Guide for Scleroderma Medical News
ISN Chat Host
International Scleroderma Network (ISN)
#5
Posted 09 August 2012 - 02:00 PM
Hi Sweet,
Nice to hear from you. I guess you haven't been our way lately - not worth it at the moment anyway. We are having so much rain we are all growing webbed feet.
Take care of yourself
Best wishes from downunder
Judyt
Nice to hear from you. I guess you haven't been our way lately - not worth it at the moment anyway. We are having so much rain we are all growing webbed feet.
Take care of yourself
Best wishes from downunder
Judyt
#6
Posted 09 August 2012 - 05:30 PM
HI Judy,
No I haven't been to NZ for a year. My son and his family moved back! So unless they head that way again to visit her family, I can't see going again. A friend of mine has been living in OZ for the past year, and it sounds like their weather has been completely off as well! Cheers!
No I haven't been to NZ for a year. My son and his family moved back! So unless they head that way again to visit her family, I can't see going again. A friend of mine has been living in OZ for the past year, and it sounds like their weather has been completely off as well! Cheers!
#7
Posted 10 August 2012 - 09:32 AM
Hi Sweet!
Oh it is SO good to hear from you!! I've missed your presence here, as obviously others have too
! I was AFRAID that you weren't feeling as well as I had hoped, since you last posted; just glad you were able to let us know you are doing as well as you can be. We just look forward to reading your posts whenever you are able! 
Sending Loving Hugs over to you and continue to think of you!
Oh it is SO good to hear from you!! I've missed your presence here, as obviously others have too
Sending Loving Hugs over to you and continue to think of you!
#8
Posted 14 August 2012 - 10:45 AM
Thanks Susie!
#9
Posted 17 August 2012 - 02:20 PM
Hi Sweet,
We sure are pleased as punch that you're back in the forums swing of things, again. You are always such a day-brightener and help, for all of us!
We sure are pleased as punch that you're back in the forums swing of things, again. You are always such a day-brightener and help, for all of us!
Warm Hugs,
Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
#10
Posted 20 August 2012 - 11:17 PM
Hi Sweet! I'm a newcomer and glad to meet you. I've been on the autoimmune carousel with sclero added to the mix recently, even though the SCL-70 test came back positive a couple of times about 7 years ago. I'm having a bad time with the gastro-intestinal manifestations and neuropathy in my fingers and toes. I've had Raynaud's for a number of years and my hands are terribly swollen.
I find it so encouraging to encounter people who are doing well so I'm glad you are!
I find it so encouraging to encounter people who are doing well so I'm glad you are!
#11
Posted 07 September 2012 - 09:45 PM
Thank you Shelley, I'm working on it! I will keep trying. 
Teatime, I so enjoy your posts, and I love your name. Anytime is always a good time for tea!
I can completely understand your gastro-intestinal problems. It's one of my worse symptoms. I wish I didn't have to spend so much time wondering each day if things will "work"
Love to everyone.
Teatime, I so enjoy your posts, and I love your name. Anytime is always a good time for tea!
I can completely understand your gastro-intestinal problems. It's one of my worse symptoms. I wish I didn't have to spend so much time wondering each day if things will "work"
Love to everyone.


