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Gastroscopy, have to stop medication 10 days before?

gastroscopy colonoscopy omeprazole plaquenil

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#1 Amanda Thorpe

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Posted 12 August 2012 - 01:09 PM

Hello All

So I am having my first gastroscopy :emoticon-dont-know: and second colonoscopy :crying: this month and have to stop omeprazole 10 days before. What am I supposed to do about my reflux during that time?

I have stopped taking hydroxychloroquine (plaquenil) as of now, off my own back, because I am sure it makes my reflux worse/causes stomach pain and I can't afford that if I can't take omeprazole.

Any suggestions as to what to do instead as I know oodles of you have had both procedures! :lol: Any suggestions as to what I can do, if anything, to make both procedures more bearable? :emoticon-dont-know:

Take care.
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#2 Joelf

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Posted 12 August 2012 - 02:05 PM

Hi Amanda,

I've never had either a Gastroscopy or a Colonoscopy although the links I've given you does explain the procedure of them. Unfortunately, it doesn't suggest an alternative to combat the heartburn once you stop taking Omeprazole. Although I can't help you with more information about the processes from my own experience (I wish I could! ;) ) I expect our members will be able to give you some advice.

What I can do, though, is wish you the very best of luck with both procedures and hope that they go as smoothly as possible for you and that you recover from them in double quick time.

My very fondest wishes,

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#3 judyt

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Posted 12 August 2012 - 04:13 PM

Hi Amanda,

I come into the category of those who have had oodles of Gastroscopy and Colonoscopies and EUS and Sigmoidoscopy and and and. . . . . .

The only med I have ever stopped has been aspirin and not even that every time. Are you absolutely SURE you HAVE to stop the omeprazole??

You ask what you can do to make the procedure more bearable?? I don't find Gastroscopy a problem, only have to stop eating 12 hours before and then I have a lovely sleep while they do their worst!! and wake up a box of birds.

Colonoscopy - now that is a whole different thing. I find that really hard, particularly the prep. Changing diet for days beforehand then trying to keep down the liquid prep and stay near the loo and keep sane. Only once I managed to drink as much as the guide book says and didn't throw up more than about twice. Which in itself is a lesson - drink as much clear liquid as you possibly can. Lemonade is fine.

I clearly remember my first ever colonoscopy in about 1991 (yes '91!!) 21 years ago!!!. Probably my first experience of being in hospital since I had my tonsils out when I was about 10. I was in a private establishment still run by nuns in those days (albeit not wearing habits any more but nuns all the same). Anyway, as turned out to be usual for me, I had a migraine which I had to put up with and no medication for it. Then when I started on the liquid prep. it all come up woosh all over the floor. I was in hospital already so things have really changed since then. Now we do the prep at home and have to clean up our own messes not surprising really when I remember the fuss that I caused.

On thinking about it, probably they want you to stop the Omeprazole so that they can see your tum at its worst, but that is tantamount to torture in my opinion. Suggest your doctor takes a drink of acid three times a day and see how he likes it!!!!

My husband had a combined procedure once and flew through it without a qualm - he can't see what all the fuss is about. BUT he doesn't have Sclero does he??

Good wishes and best of luck.
Judyt

#4 judyt

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Posted 12 August 2012 - 09:53 PM

Just to keep the record straight - in case anybody is interested - the most interesting and long winded "Gastroscopy" I have endured was a TOE. Trans- Oesophageal Echocardiogram. I was in the hospital for a Valvoplasty on my Mitral Valve and pictures from this angle were needed for that.

My oesophagus is not in the best condition for such things and it took a very long time for the Tech. to get some useful pictures. Afterwards I had the most horrendous sore throat I have ever had.

Judyt

#5 Amanda Thorpe

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Posted 13 August 2012 - 06:02 AM

Hello Judy

Yep, just spoke to the endoscopy clinic and they said omeprazole clouds things if they have to take a biopsy, it makes everything turn up negative? Can't have ranitidine either. Thankfully my reflux is not that bad so I am sure I can manage 10 days without omeprazole as there are 2 over the counter remedies they said I could use. I did muse to the receptionist how people with severe reflux manage and she said they do. I doubt that and certainly no one with scleroderma, can you imagine Peggy of these forums managing 10 days without her omeprazole or equivalent?

Anyone else had experience of increased reflux/stomach pain whilst taking hydroxychloroquine (plaquenil)? Whilst taking it not only did I have to double the dose of my omeprazole but I started to have swallowing difficulties and stomach pain. Anyone else? I'm not sure if I'll start it again.

Take care.
Amanda Thorpe
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#6 inkedup

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Posted 13 August 2012 - 02:02 PM

It might be that you have to avoid any foods that makes your reflux worse. I couldn't manage 10 days I'd be in agony! Things that trigger it for me are fruit juices, anything fizzy, alcohol, spicy foods. Also avoid milky drinks, people often drink milk to reduce the acidy feel, but it in fact provokes your stomach to produce more acid.

#7 lizzie

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Posted 14 August 2012 - 02:56 PM

Hi Amanda, I've had 6 gastroscopies (with biopsies) in the last 3 years and have never had to stop the PPI (Pantoprazole) which I take morning and evening. I did however have to stop the Pantoprazole for a week last year when I had manometry and 24 hour monitoring. I was pretty worried that It would be a week of unrelenting reflux , but in fact was OK - I have had worse reflux when taking the PPI! Having said that, my reflux waxes and wanes and it could just be that I hit a good week. Hope you cope OK.

Lizzie

#8 Amanda Thorpe

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Posted 15 August 2012 - 04:38 AM

Thank you all! It's morning No1 without omeprazole and wouldn't you know it I have that lovely acid sensation at the back of my throat! My husband is getting me some gaviscon to try and hopefully that will do the trick!

Take care.
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#9 rubydoo

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Posted 17 August 2012 - 01:12 PM

Hi Amanda,

I have had both procedures done and was never told to stop my omeprazole. If gaviscon doesn't help ask hubby to get you some gaviscon advance. I don't know why but in the dim and distant past, pre scleroderma, I had crippling heartburn when I was pregnant. Gaviscon was useless but for some weird reason gaviscon advance worked a treat. It's worth a try anyway. Good luck with the 'oscopies and hope the results come back okay.

Take care,
Helen.

#10 Amanda Thorpe

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Posted 18 August 2012 - 05:47 AM

Thanks Helen, I'll bear that in mind!

Take care.
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#11 chockers

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Posted 19 August 2012 - 11:22 AM

gaviscon will help, you may need a lot though, pill and liquid form.

#12 Amanda Thorpe

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Posted 19 August 2012 - 11:45 AM

Hello All

Spot on, Helen, my husband got me some gaviscon advance and so far so good. It's the most relief I've had so far! I also bought the tablets and rennie's and they were awful, in my opinion. The gaviscon tablets have a weird texture that sticks to your teeth, they taste awful and do nothing whereas the rennie's are chalky and just make you spit up the reflux. My recommendation is also gaviscon advance when it comes to over the counter remedies.

Take care.
Amanda Thorpe
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#13 Bobby Dazzler

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Posted 05 September 2012 - 11:24 AM

Hi Amanda,
It's the stranger from Scotland! It's great to see that the site is going strong and it's great to see some of the familiar names and Hello to anyone else who is new to me.
In response to your question, yes I have unbearable heartburn and it seems worse since I started the hydroxychloroquine (plaquenil) I am also on 2g Mycophenolate Mofetil daily plus numerous other meds. I currently take 60mg and Ranitidine for the heartburn but it is still bad.
They now want me to stop the Ranitidine because I have a lump on the left hand side of my breast and although not that common in males they think that the Ranitidine could be the cause and messing about with my hormones! So as usual it's a game of risks and benefits.(the horrendous pain in the chest versus horrendous heartburn)
I hope all goes well with your examinations and I will keep in touch.

#14 Joelf

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Posted 05 September 2012 - 01:34 PM

Hi Bobby,

How lovely to hear from you again!! :emoticons-clap: I've often thought of you and wondered how you were getting on, particularly as you and I joined the forums within two or three days of each other.

I'm very sorry to hear that you've had problems from the Ranitidine and I do hope that your rheumatologist can suggest another medication to help you with the heartburn from which you're suffering which perhaps may not have such a worrying side effect.

Please don't be a stranger! ;)

Kind regards,

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#15 Bobby Dazzler

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Posted 05 September 2012 - 02:48 PM

Hi Jo,
Yes it's been too long without keeping in touch and this time I will not become a stranger.
Goodness, it seems such a long time ago that I was a "Newbie" and so many things have happened.( that's for another post as it will be like a 5000 word essay ?? I think I now have a consultant for every part of my body ?
I haven't looked at previous posts to get a catch up, but hopefully you are keeping well and I wish Amanda was not having such a rough time.
As always if I can pass on any advice due to my own experiences with scleroderma then I will be delighted to do so

Take care and I will keep you updated x

#16 Shelley Ensz

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Posted 06 September 2012 - 12:41 PM

Hi Bobby,

It's great to hear from you again. We are waiting for your 5,000 word essay. It is due tomorrow, as we are tough taskmasters here. However, we will give you a passing grade even if you don't come through with 5,000 words. :D
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#17 Amanda Thorpe

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Posted 08 September 2012 - 12:59 PM

Hello Bobby

Great to hear from you again! Have you tried omeprazole for the reflux? That type of drug, known as a proton pump inhibitor or PPI (I have no idea why!), is common among us sclerodermians and works well for many of us. I am now back on the plaquenil and omeprazole so far the reflux isn't worse but maybe it's building up! Something to look forward to eh?

Very briefly, I had the gastroscopy and colonoscopy, went out like a light and had no recollection of anything when I woke up. However it was kind of a total waste of time, although everything is "normal" as in no cancer, Crohn's, colitis, but when I asked the doctor (who turned up late and had the lovely receptionist apologise for him) what the scleroderma had done to my gut his reply was..."You can't see it (namely scleroderma) with a camera"... Needless to say I was speechless.

He then told me I had a small hiatus hernia and gave me a letter saying my upper GI tract was normal?? There's no mention of the hernia on the report, so I guess I just tell the Royal Free the result? Anyone else reading this and thinking how ridiculous, unprofessional and so forth? I am going to have to contact the centre and get the report to reflect what the doctor said!

They also took biopsies and they have come back normal but I didn't expect anything else, neither did I suspect cancer, Chron's etc, I wanted to know what the scleroderma had done, if anything, and I have no idea because, you can't see it with a camera so all of you who have had or are going to have either procedure remember this fact, you can't see scleroderma with a camera. Right.

Take care.
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#18 Joelf

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Posted 09 September 2012 - 04:32 AM

Hi Amanda,

I'm pleased to hear that your 'oscopies' went without a hitch; apart from the doctor's comment being worse than useless and not very helpful!! Surely the camera might have shown some thickening of the gut lining, otherwise there doesn't seem much point in your having to go all through the procedures? Perhaps the hiatus hernia could be contributing to the reflux and heartburn you're experiencing?

I'm glad, anyway, that the procedure is behind you, even if you do have to chase the centre up for the relevant details to send to The Royal Free.

Best wishes,

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#19 judyt

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Posted 13 September 2012 - 07:31 PM

Interesting Amanda, I have often wondered why, considering the frequency of colonoscopies I had prior to 2003, nobody suspected Sclero!! I thought that surely they would have been able to see it and although I had an oesophagael stricture stretched in about 1996 still nobody suggested any reason except reflux.

Actually, to be truthful, I always suspected that the doctors who were looking simply didn't understand what they were seeing but maybe not.

The hiatus hernia they can see and I have one of those. Like you I am surprised when a report comes back "normal" when it can't possibly be.

It really would be helpful to be able to see what the Sclero has done to your bowel, and from my memory when I was asking that specific question the response was an MRI which did show the damage so maybe that is the answer.

Best wishes
Judyt

#20 Amanda Thorpe

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Posted 15 September 2012 - 01:09 PM

Thanks Judy, as I have a pacemaker/defibrilator, I can't have any sort of magnetic resonance imaging. It would rip the device out!

Take care.
Amanda Thorpe
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