Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Underwear!


  • Please log in to reply
32 replies to this topic

#1 Teatime

Teatime

    Senior Bronze Member

  • Members
  • PipPipPip
  • 54 posts
  • Location:Texas, USA

Posted 23 August 2012 - 01:03 PM

Does anyone else have a problem with rashes from underwear? My skin has become increasingly sensitive and doesn't handle anything like latex or nylon well at all. A number of years ago, I started to break out in horrible circular red rashes when I moved to a warmer climate and my doctor told me to avoid nylon stockings and wear only cotton underwear. That's served me well until now.

I have a bumpy rash all around where the leg hole elastic touches my skin. I put medicated powder on it but it sometimes hurts a bit. I'm not sure what to do about this -- I need to wear underwear, lol ! I guess I need to start seeing a dermatologist. My new rheumatologist was surprised I don't have one but the one I was sent to was awful. In fact, I never even met him! His nurse practitioner did all of the medical stuff because he wanted to focus on cosmetic procedures! She even did my skin biopsies! Anyhow, maybe I need to find a good one who knows something about autoimmune diseases.

#2 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 23 August 2012 - 01:41 PM

Hi Julie,

I expect that the recent hot weather you've been experiencing hasn't helped with your rash and it does sound very irritating and uncomfortable.

I would definately suggest that you try and consult a dermatologist; perhaps your new rheumatologist can refer you to one that she recommends?

The only thing I could suggest to help with the bumpy rash on the tops of your legs is to make sure that your underwear is very loose and that the elastic isn't tight against your skin. I always wear cotton, not nylon, as you've stated, particularly if the weather is hot and humid, as it very often can be in the UK.

I expect we will have other members who can give you some helpful advice as well.

Kind regards,

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 23 August 2012 - 02:28 PM

Hello Julia

Have you tried french knickers because they don't have elasticated legs, the legs are open, like shorts? Other than that, a dermatologist for sure!

Remember that cotton is the best fabric to minimise sweat and sweat causes, or can cause irritation.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,274 posts
  • Location:Minnesota

Posted 23 August 2012 - 10:38 PM

Hi Julia,

That sure is an interesting question. :emoticon-dont-know:

As it happens, many ordinary (otherwise healthy) people can't tolerate elastic or latex, either, so there are online businesses that specialize in selling underwear that is latex-free and elastic-free and all of pure, soft (even organic) cotton. But I am far more intrigued by Amanda's suggestion, as I've never heard of french knickers until now.

That said, for autoimmune issues that involve interesting skin phenomenon, like scleroderma skin tightness, you will probably want to seek out a dermatologist who isn't into cosmetic procedures or doesn't specialize only in skin cancer, etc. Your scleroderma expert should be able to refer you to a good one. Usually they are pretty hard to find, nowadays, and often they are associated with major medical university hospitals in some capacity.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 24 August 2012 - 02:13 AM

Hello Shelley

You've lead a sheltered life! French knickers are designed to be sexy little numbers, usually is satin or silk, accompanied by a camisole top in matching fabric. They're perfect to wear with suspender belts and stockings...so I'm told!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#6 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Auckland, New Zealand

Posted 24 August 2012 - 03:29 AM

Sorry Shelley,
Even I from the unsophisticated downunder part of the world know about French Knickers.

Judyt

#7 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 24 August 2012 - 09:10 AM

lol Ladies! I'm getting a true education here!
Amanda, I had NO idea what french knickers were! lol

Since the onset of Sclero, I've worn cotton panties, for the above named reasons; Another issue I have is profuse perspiration (also known as SWEATING ;) LOL ),which is another reason I wear cotton bloomers, as opposed to the french knickers of days gone by for THIS gal!
As was mentioned, the hot temperatures definitely don't help our already difficult issues, but winter will soon be here, so I'm trying not to complain too loudly!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#8 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 24 August 2012 - 02:07 PM

Ha Susie! Are you trying to tell us you wear granny pants? My sister until she became a Mrs again and Ma still does. Not only are the offening items cotton but they come all the way up, nearly to the waist! NO! Underwear must be cotton but it can still be pleasing to the eye.

For the sweating issue, have you tried panty liners? You can change them as often as you like and they help keep underwear fresh. You can get scented ones but they may cause irritation?

Take care lovely lady.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#9 JudithL

JudithL

    Bronze Member

  • Members
  • PipPip
  • 20 posts

Posted 24 August 2012 - 06:31 PM

Just thought I'd point out that in the U.S. the undergarment being referred to as "French knickers" is usually referred to as "tap pants."

#10 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 25 August 2012 - 09:19 AM

Thanks, Judith!

I've heard of "French knickers" before, but never described as "tap pants"? :emoticon-dont-know:

It's amazing what I've learned from these forums!! :o

(Mind you, I think I must have had quite a sheltered upbringing!!) ;) :lol:

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#11 Teatime

Teatime

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 54 posts
  • Location:Texas, USA

Posted 25 August 2012 - 12:15 PM

LOL, this has turned into a fun conversation! I'm familiar with the term "knickers" because of my English friends. When they came to visit, Nicky was afraid she didn't pack enough underwear so we went to a store to buy some. She really liked a particular brand so the next time I went to England and asked if I could bring her anything, she said the "little knickers with the strappy bits." LOL

Anyhoo, the "French knickers" sound like just the thing! I'm actually wearing small pajama shorts now and they're so comfortable but they're too thick to wear underneath clothes, especially the light, thin clothes I wear in our Texas heat. I just might wait until I come to England and Europe and buy them there. They might be less expensive than here if they're popular.

#12 KayTee

KayTee

    Senior Bronze Member

  • Members
  • PipPipPip
  • 84 posts
  • Location:Northern California

Posted 01 September 2012 - 07:15 PM

French knickers and tap pants - all good. I've had some relief with underwear made of Tencel. Good luck.
Kay Tee

#13 Lynnie

Lynnie

    Silver Member

  • Members
  • PipPipPipPip
  • 173 posts
  • Location:UK HULL EAST YORKSHIRE

Posted 04 September 2012 - 02:25 PM

Hi Julia and all you lovely ladies :emoticons-line-dance: well, I've had a a giggle! But on a serious note I see a really lovely dermatologist he's quite dishy (handsome too!) but he's really nice to talk with and has been helpful to me. I've had a periodical carry on with sore rash patches in my groins and at the back of my bra on my back; I thought it was the patch of telangiectasia irritating and making it sore on my back...the verdict was ....washing liquid/powders and fabric conditioners!!! He stated that the chemicals in both 'sit' in the fabrics and when we get warm and moist at knicker leg holes and the like these chemicals can react with skin even if you are healthy, but, our skin is bonkers [his term lol] so he said to ....

A) save all my underwear up and wash them in a organic, no scents additive free wash liquid /powder and don't go mad in the amount I put in!
B) set the washer to do an extra rinse programme, to make sure it's all washed out.
C) buy a good barrier cream and apply it to my groins every morning after my shower regardless to form a barrier between the pant leg and me to avoid rubbing and getting sore and use a pantie liner and change frequently to stay fresh and dry, and if it does flare up its probably fungal as it's a 'warm moist' place and to use a antifungal cream that will clear it up in 24/48hrs

He also said because of the immune suppressant drugs (prednisolone etc which I take) leaves us more susceptible to these issues ie candida and just to take as much care as I can, and not to feel that I'm dirty or whatever my mind tells me I am ..just to treat it if it needs treating and to prevent it if I can!!

Hope this helps and thanks for raising the topic as I'm sure all women sick or well have these issues from time to time...ahhh to be a woman eh!!

Hugs,
Lynn

#14 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,274 posts
  • Location:Minnesota

Posted 06 September 2012 - 12:16 PM

Lynn, thanks for your explanation and tips on this topic.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#15 miocean

miocean

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 06 September 2012 - 12:28 PM

I have found that because of the calcinosis on my buttocks, right at my underwear line, that certain things really bother me.

Like my bathing suit bottom from last year since I've gained some weight ! :) The new one is much more comfortable.

Help, I think my underwear is shrinking. :lol:

miocean
ISN Artist

#16 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,274 posts
  • Location:Minnesota

Posted 06 September 2012 - 12:30 PM

What a hoot, Miocean! :D
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#17 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 06 September 2012 - 10:52 PM

Hi Miocean,

Help, I think my underwear is shrinking. :lol:
miocean


Yes, I can relate to that......funnily enough all my clothes seem to be shrinking?? It must be to do with my washing powder!!! ;) :P

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#18 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 08 September 2012 - 03:10 PM

Hello Ladies

Fabric softener is a NO! NO! for people with skin irritaion(s), whether used in the washing machine or tumble dryer. I stopped using it a few years ago, after being tipped off to do so by Jeannie McClelland, and it made a difference for sure.

As funny as the topic is, the irritation isn't, particularly in "that" area, it's not like you can have a discreet scratch after all.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#19 Teatime

Teatime

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 54 posts
  • Location:Texas, USA

Posted 14 September 2012 - 08:49 PM

Hi Miocean,



Yes, I can relate to that......funnily enough all my clothes seem to be shrinking?? It must be to do with my washing powder!!! ;) :P

I think I'm using that very same brand!!! Fancy it shrinking undies in both the UK and the US!!! I wonder where else it's making mischief?! :) Seriously, though, I've bought some "boy shorts" undies, as they're called here, and I hope the switch helps!Julia

#20 Kathy D

Kathy D

    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:Rocky Mountains USA

Posted 26 September 2012 - 10:48 PM

I have been so sick the last few months I ran out of clean undies. Even the disposable grandma panties they gave me after giving birth lol! I just can't find the strength to do our laundry. Sigh.
Diffuse Scleroderma Diagnosed March 2009