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Hyperthyroidism High Hopes


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#21 Joelf

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Posted 15 November 2012 - 12:00 AM

Kathy, I'm so pleased that things are looking up for you! :woohoo:

It does restore your confidence in your doctor when everything works as it should and hopefully, you'll now be able to get the treatment you need to improve your quality of life.

Excellent news!! :emoticons-line-dance:

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#22 Kathy D

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Posted 18 July 2016 - 07:21 PM

Bummer, blood work from last week shows I am hyperthyroid again. They will run additional bloodwork and we will take it from there. My eyes have been a mess for a couple years or so now (blamed that on whatever autoimmune coming at, was wondering about sjogrens), and the last 6-9 months I have had a bigger appetite yet when I get weighed at doctors appointments I have lost about 10 lbs in the last 3 months. Woo Hoo any kind of bread has tasted fantastic!! I guess I need to buy a new battery for my scale to weigh myself at home LOL (roll eyes).

Bummer that my face is tightening/skin stretching but I have a double chin despite a low BMI. Bummer the waistlines in my pants are now tighter though my arms and legs are skinnier.

I noticed muscle loss in my arms and especially in my legs and rear end. Initially I thought it was from becoming more sedentary the last 5 years, now it all makes sense. I am hoping for the nuclear pill to kill at least part of it, but not all of it. Being hypothyroid and taking the replacement meds does not sound fun either. Fatigue has pretty much ruined my life and I fear adding more fatigue from going hypothyroid.

Its so hard to explain stuff to people, some think I am anorexic when they see my legs, and others assume I'm overweight if they see me from the neck up. Nope, neither, just as normal as I can be with scleroderma.

The one positive thing I can share is that my home is on its way to being in order now... I've been using the marital stress and bonus thyroid energy to get the house in order.
Diffuse Scleroderma Diagnosed March 2009

#23 Joelf

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Posted 18 July 2016 - 07:58 PM

Hi Kathy,

Sorry to hear that your thyroid problems have cropped up again.

Hopefully, the medication you're taking will help you to stabilise your thyroid to normal levels and I hope that your fears are unfounded and that you will not become hypothyroid and be swopping one problem for another.

Kind regards,

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#24 Shelley Ensz

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Posted 20 July 2016 - 09:33 AM

Hi Kathy,

 

I'm sorry you have Grave's disease on top of everything else. Generally speaking, if you have the radioactive iodine therapy, you will likely become hypothyroid sooner or later, but that is very treatable and better than suffering from Grave's. One caution is that this treatment could make eye involvement worse, so be sure to discuss the full range of treatment options with your doctor.  See Grave's Disease Treatment by Mayo Clinic.

 

It's delightful that you're also focusing on the silver lining of the doubly-whammy of Grave's plus divorce. A clean house is a terrific bonus, and as you know, one that is often hard to come by with chronic illness. You go, girl! :yes:

 

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#25 Kathy D

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Posted 10 September 2016 - 04:05 PM

Hi Ladies, 

 

I still have Graves, apparently its' mild enough I will not be treated at this time.  Enough that I still get trembles and sweat too much and get twitches and have noticeable muscle loss (likely in conjunction with the new more sedentary lifestyle now) and sometimes my heart beats fast........Silver lining would be not having to take another med again (Methimazol), and marriage is back online at this time too:)


Diffuse Scleroderma Diagnosed March 2009

#26 Shelley Ensz

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Posted 16 September 2016 - 12:02 PM

Hi Kathy,

 

Well, it's interesting that you won't be treated for Grave's right now.  If you have any doubt at all about your treatment plan, be sure to seek a second opinion from a board certified endocrinologist, because it sounds like you are experiencing uncomfortable (and treatable) symptoms.

 

Also, please be sure to read up about "thyroid storm" which can occur with untreated and undertreated Graves disease. It's a very sudden, life threatening condition, so if you are aware of the symptoms you will know if/when to seek emergency care. It's also a good idea for people close to you to be aware of thyroid storm symptoms, in case you are feeling too grouchy or sleepy (from the storm) to react. It's not that it definitely would happen, just something to not take any chances with, either, especially since you are symptomatic but untreated at the moment.

 

I'm delighted that your marriage is "back online".  That's the first time I've heard that phrase, so I got a belly laugh from it. It's amazing how a lighthearted sense of humor can help restore relationships (taking things too seriously can be such a downer), so clearly you already have that arrow in the quiver!

 

:hug-group:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.