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Not sure what I have any more.....

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#1 cartekat



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Posted 27 September 2012 - 08:47 PM

Hi, my name is Katherine.

I got my first "spot" when I was six on my torso and the "bruise" never went away. I got another one when I was 12, had a skin biopsy and was diagnosed with Morphea. After being told over and over there was nothing they could do, I lost mobility in my big toe as my tissue deteriorated and I stopped going. This was 2003; I'm now going to be 23 and another spot has formed...... on my knee. I'm scared of what will happen as I saw what it did to my toe and when it attempts to bend, my leg goes into all out spasms. I have little tissue left on my shin and can easily feel the bone. I see a joint doctor (so can't spell it); I'm scared I'll need a total knee replacement at 23, so now what?

#2 Joelf


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Posted 28 September 2012 - 09:49 AM

Hi Katherine,

Welcome to these forums!

I'm so sorry to hear that you have been diagnosed with Morphea and that it appears to be flaring up again. I can understand that you must be feeling very worried and scared about it.

However, there are effective treatments for Morphea particularly phototherapy and UVA1. I do suggest that, if possible, you consult a Scleroderma expert and then you won't have to worry about a knee replacement.

Now that you've found our forums and joined our community, please do keep posting and let us know how you are faring.


Kind regards,
Jo Frowde
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#3 Sweet


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Posted 28 September 2012 - 12:13 PM

Hi Katherine,

Welcome to the Sclero Forums. I'm so glad you found us, but I'm sorry it's because you were diagnosed with Morphea. Jo gave you a couple of really good links, so I hope you find them helpful.

Do keep us posted on your progress.
Warm and gentle hugs,

ISN Support Specialist
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