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small mouth microstomia systemic scleroderma

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#1 chockers

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Posted 14 October 2012 - 02:37 PM

Hi Folks,

I have been put on a bit more Methotrexate (10mls) and an anti inflammatory. Soon afterwards I started with a sore mouth and then a white patch on my gums.

Dentist said it was maybe the drugs but it looked nothing to worry about .

Now the gum is still a bit sore but getting better. The tooth leans over and it's the wisdom tooth; today the filling fell out so now I look as if I have a hole in my gum? I might not have, but the tooth leans over. Now my mouth is getting a little tight and I'm not eating and chewing well and my dentist won't fit me with anything to fill the gaps ie infection, small mouth, dry mouth. I hope I don't need it out?

With slight problems now also being on benefits, I get treated on the NHS.

I did say to him when you can't manage me, would you refer me? Is the Eastman Hospital the place to get referred to if I have problems?

Christine

#2 Joelf

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Posted 15 October 2012 - 12:06 AM

Hi Christine,

Sorry to hear you're having more problems with your teeth.

Thankfully, I haven't had dental problems from Scleroderma, but I know we have other members who unfortunately have had and have been treated by the Eastman Hospital. They will probably be able to advise you more than I can; the only thing I do wonder is, if you could be treated there under the NHS? I have a sneaking suspicion that you may have to go privately to them, but obviously your first port of call is to your own dentist to see if he will refer you under the NHS.

I do hope you can get something sorted out.

Kind regards,

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#3 chockers

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Posted 15 October 2012 - 04:39 AM

Well it will have to be NHS private is too expensive.

#4 Amanda Thorpe

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Posted 15 October 2012 - 07:23 AM

Hello Christine

We covered this topic before, this time last year in fact, have a look at the posts. Ring the Eastman Dental Institute and ask how you get a referral as a NHS patient or look on their website.

Take care.
Amanda Thorpe
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#5 Nene

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Posted 15 October 2012 - 08:47 AM

I am experiencing problems with my teeth and had an appointment at the Eastman last month. I was referred by my dentist for an inital consultation on the NHS . Future treatment will probably need to be private.

I received really good advice so would certainly recommend at least an initial consultation if your dentist thinks it necessary.

Keep smiling!

#6 Amanda Thorpe

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Posted 15 October 2012 - 08:56 AM

Welcome Nene and thank you for posting about the very place we're talking about! Do you have mouth problems because of scleroderma and why do you think further consultations would have to be private?

Take care.
Amanda Thorpe
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#7 Joelf

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Posted 15 October 2012 - 10:24 AM

Hi Nene,

Welcome to these forums and I'm so pleased that you've posted!

Perhaps it might be possible for you to get treatment under the NHS after all? I notice from their website that they deal with referrals for NHS patients so it might be worth pursuing it with your own dentist?

Now you've started posting, please do continue!

Best wishes,

Jo Frowde
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#8 Nene

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Posted 16 October 2012 - 01:29 AM

Yes, my dental problems are due to scleroderma. I have taken care of my teeth (no fillings!) so it seems particularly cruel. Still, some people see a glass as half full, some as half empty but with scleroderma I am grateful to just have a glass!

The consultant I saw was happy for the consultation to be on the NHS but would not guarantee that treatment would be. I think it probably depends what needs to be done. I'm seeing my dentist again in a couple of weeks so will keep you posted.

#9 Shelley Ensz

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Posted 16 October 2012 - 07:37 PM

Hi Nene,

Welcome to Sclero Forums!

I really appreciate your special attitude of being grateful to just have a glass. :emoticon-dont-know:

All day today I saw my glass as only half full, thinking that was good enough, and actually forgetting to be grateful that I even have a glass. Sometimes when we are dealing with illness or life events, it is hard to keep our perspective. Happily, these forums often serve to adjust our attitudes for us, sometimes even when we don't realize they need adjusting.

Thank you! :emoticons-thankyou:
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Warm Hugs,

Shelley Ensz
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#10 Amanda Thorpe

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Posted 17 October 2012 - 12:42 PM

Nene, I would also like to thank you for the quip "but with scleroderma I am grateful to just have a glass"! Sometimes it does come down to that, being grateful for just being alive and so forth. As Shelley said this forum, and obviously the people on it, set our attitudes straight.

I hope you'll continue to post!
Amanda Thorpe
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#11 Billybob

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Posted 09 November 2012 - 03:55 PM

All

Sorry to come to this conversation late.

I attend the Eastman Dental Clinic. I was not sure if the problems I was having with my mouth were due to scleroderma or not. I was referred by the Royal Free and am now treated at the Eastman because I have scleroderma whether the problems are caused by the scleroderma or not.

Under NHS policy you are able to ask any doctor treating you (GP, Consultant or Dentist) to refer you to the Eastman Dental Clinic. They will refer you and the Eastman consultant will decide whether or not you need treatment, not the referrer. Should you be found to need treatment you will have this under the NHS as you would any other hospital treatment that you are referred for and is deemed necessary for you to have. The Eastman is part of the UCLH group of hospitals and is therefore an NHS Trust.

Hope this helps.

#12 Amanda Thorpe

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Posted 09 November 2012 - 05:04 PM

Hello Billybob

Welcome to the forums and thank you so much for clarification about the Eastman Dental Clinic, many of our members are very interested in it.

What problems are you having with your mouth and have you had scleroderma long?

Take care and keep posting.
Amanda Thorpe
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#13 Joelf

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Posted 10 November 2012 - 02:41 PM

Hi Billybob,

Welcome to these forums and I'm pleased to hear that you're receiving treatment from the Eastman Clinic.

Now that you've joined our community, please do keep posting!

Kind regards,

Jo Frowde
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