I met my very first Scleroderma person two days ago and it gave me so much hope and inspiration I just had to share with you.
She is younger than me (23), has had Scl for 5 years and only in the last 6 months has she been feeling better. Her hands and arms have softened and she has more mobility in her fingers and body, and MUCH more energy than previously. she puts it all down to Prednisone.
My doctors have NEVER mentioned this drug to me and I get mixed opinions on it from family and friends. Some say wonder drug, others say dangerous drug.
What do you know about it? I know some of you are taking it and I'm interested to hear your stories.
What amazed me was that she has just finished her training to be a Personal Trainer... I commented that I can't even get down on the ground properly and stretch let alone train others in fitness. She said that she used to be like that too but perserverance with stretching and the Prednisone has seen her come out the other side.
There is always hope!!