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Cover-up consultation...any advice?

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#21 nickisboi25

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Posted 09 November 2012 - 07:25 AM

I didn't use it on my face but seeing as people are always advised to take makeup off before they go to sleep, you all might have a point. The skin on our faces is the most sensitive, most probably because it's constantly exposed to the elements.

As to where to get hold of it, I only know that information for the UK (specifically London) sorry. I believe Shelley even posted a link to this site's camouflage makeup information on this thread, a couple posts back.

Hope this helped a bit; sorry I couldn't do more. One last bit of advice is when you get to experience the makeup, do it with an open mind. Based on my personal experience it's really good but not perfect. I definitely think it's a good choice you're making to explore the makeup option and I hope you get to try it out soon :) any other questions, just ask.

#22 nickisboi25

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Posted 14 November 2012 - 05:20 PM

Hi all!

Those of you following my posts will be aware I'm in counselling for some personal issues but that's coming to an end in early December. I recently went for a camouflage makeup consultation and while there I found out the same organization offers one to one counselling to. Got my follow up phone-call today and my assessment is on November 27th. As a self confessed therapy junkie this is really exciting!

Talking to a stranger about your problems can be daunting but it's done me the world of good. These sessions are more closely targeted to how my Morphea impacts my life. I think counselling is such a valuable avenue that should be explored by many. As a lot of you know Scleroderma can be psychologically challenging as well as physically. So far I've been extremely fortunate with the physical side of things but believe me I've had my fair share of emotional upset.

I might not have the years, life experience or Scleroderma experience for that matter as most of you but I know what it's like to feel like I've been beaten down by this disease. If this is my way of helping someone else I'll take it. Any counselling queries or questions about how it works (don't believe the movies, there's no white couch) please just ask.

#23 Shelley Ensz

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Posted 16 November 2012 - 01:22 PM

Hi Nickisboi,

Congratulations on finding an additional counselling resource, and taking advantage of it. Just about every time I've been faced with something major I've turned to counselling for help in understanding and overcoming it, as well as to support groups.

Another resource I like to turn to is the local library. During a divorce I went straight to the library and got an armload of books on how to make household repairs. Nothing was even broken in the house, but it still made me feel a million times better to be prepared for it anyway.

Self-insight and knowledge are great tools to help us eventually be able to also reach out to others and try to make the world a better place.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#24 Kathy D

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Posted 19 November 2012 - 02:07 AM

Having oily skin most my life powder didn't work well for me but as I am older and going through the change now, I camoflage then I cake on the powder and it works!! It even works on my decollete for striations and spider veins for pictures! I hope you might have good luck with it too.
Diffuse Scleroderma Diagnosed March 2009

#25 nickisboi25

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Posted 26 November 2012 - 02:30 PM

Hi all,

Sorry for the late reply. Been going through a rough patch recently but I'm back ;) Shelley trust me, that guy sat on the floor surrounded by books in the 'Body and Mind' section of the library...that's me! Might just go do that again soon, it's been a while. Montreal, I loved your story. That's the definition of taking ownership. That's one of my long term goals, to own my Morphea. To just be like, okay this is my thing, how do I own it and not let it own or define me. Thanks for sharing.

Counselling assessment is tomorrow! Really excited. Like everything in life that's worth anything, it's uncomfortable to start but once I get going I know I'm going to love it.

Just a totally random question I'm gonna throw out here. If Morphea is down to over production of collagen, does that mean I have more collagen than the average person or just on my Morphea patches?

#26 Joelf

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Posted 28 November 2012 - 10:22 AM

Hi Nickisboi,

I hope that your counselling assessment went well yesterday. :)

Certainly one of the features of Scleroderma is the over production of collagen; in my case it's primarily in my lungs, but because my joints are also affected, I would hazard that there is an over production there as well which causes inflammation in the connective tissues.

I've included a couple of interesting links on Update on morphea: part I. Epidemiology, clinical presentation, and pathogenesis and Morphea which I hope will give you some more information.

Kind regards,

Jo Frowde
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#27 miocean

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Posted 29 November 2012 - 08:15 AM

Hi Nickisboi,

I am so happy to hear you are making progress! Please continue to update us.

Funny, just the other day I was looking in the mirror at all the lines on my face from scleroderma, sun exposure and aging and thought that maybe I should go through with one of the procedures my doctors have suggested, even though they could be risky to my beautiful transplanted kidney and then thought, no, this is who I am. When I smile the lines aren't quite as noticeable so I smile a lot, and often get rewarded with a smile back in exchange. :D

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#28 Shelley Ensz

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Posted 29 November 2012 - 12:48 PM

Hi Miocean,

You bring up a very important point, which is to smile. If we are not smiling and gracious to others, it doesn't matter if we have thousands of dollars of plastic surgery, the best wardrobe in the world, and no illness or disfigurement of any sort. So we should never get so distracted, dealing with the challenges of illness and life, that we forget to haul forth the greatest beauty asset of all time: our smile.

It's also been proven in studies that the mere act of smiling, even if we don't feel down, makes us feel better! What a win-win for all of us!

:yes:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#29 nickisboi25

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Posted 01 December 2012 - 03:57 PM

Hi all,

Thank you for your replies ;) The assessment went really well and I'm starting some work with them in January. New year, new start!

Joelf, thank you for the links. I will definitely check them out.

Miocean, I love that feeling of "this is who I am". That's definitely what I'm working towards.

Shelley, I couldn't agree more. The best accessory is indeed a smile. Shame I'm so self conscious of my teeth, but that's another story! Some dental work will be my birthday present to myself next year :)

I've also been fortunate enough to be given a place on a heavily subsidized exercise scheme with free personal training sessions. Going for my induction at the gym tomorrow. Getting changed and showing my Morphea to the world...another challenge I'm determined to rise to. Forget fear, it's my time now!

#30 Joelf

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Posted 02 December 2012 - 05:04 AM

Good for you, Nickisboi and may you enjoy and do well at your gym induction!! :emoticons-yes:

Kind regards,

Jo Frowde
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#31 miocean

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Posted 02 December 2012 - 04:27 PM

Nickisboi,

What a difference this post is from your first one!
Congratulations on your progress and achievements! :emoticons-line-dance:


It's not always going to be uphill but for now enjoy the ride. You are doing great!

My own personal journey has been along the lines of I'm not doing so great, I'm doing better, I'm not doing so great, I'm wonderful, I'm not doing so great, I'm doing better, I'm wonderful and on and on.

The past week is a perfect example:

I saw 2 doctors, had 3 tests and everything was great, I was even declared "perfect" by a doctor. Then I had blood work done only to find out my kidney transplant medications levels are off and my creatine is high, doses have to be adjusted and I have to go for labs again before I see my nephrologist this week. I've come far enough along to not let changes in levels upset me as I know numbers can change but they affect my moods so it is a real roller coaster ride right now.

Enjoy your personal training.

miocean
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#32 achilles

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Posted 02 December 2012 - 06:43 PM

Hi Nick,

I'm quite excited to read this thread as I'm looking into cover up makeup myself. ( I have 2 patches of morphea ) How did you get yourself referred for a consultation? Any particular products or tips for applying the makeup?

Cheers.

#33 Joelf

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Posted 02 December 2012 - 11:56 PM

Hi Achilles,

Welcome to these forums!

I'm sorry to hear that you're suffering with Morphea patches.

Please do keep posting and let us know how it progresses.

Kind regards,

Jo Frowde
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#34 Joelf

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Posted 03 December 2012 - 12:03 AM

Hi Miocean,

Sorry to hear that your last blood tests were not so good. I know how worrying it can be when things fluctuate and I hope that your next labs and appointment with your nephrologist will show an improvement again.

:emoticons-group-hug:

Best wishes,

Jo Frowde
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#35 achilles

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Posted 03 December 2012 - 06:42 PM

Hi Achilles,

Welcome to these forums!

I'm sorry to hear that you're suffering with Morphea patches.

Please do keep posting and let us know how it progresses.

Kind regards,


Thanks for the welcome :)

#36 nickisboi25

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Posted 07 December 2012 - 05:23 PM

Hi all! Thank you for your replies. The gym induction went really well, seems like a nice place. That being said I got ready to go for a session on Wednesday then found myself having a mild panic attack at the thought of exposing my Morphea and the potential judgement that comes with something as normal as a guy taking his top off to get changed. My friend made an interesting comment, "there's no courage in the absence of fear". I'm gonna be courageous and get in that gym in the new year if I have to cry my eyes out and shake so bad I can't keep still! Regardless of anything my dreams are going to come true!

I'd also like to extend the welcome to Achilles. My consultation for the makeup was arranged through my doctor. I live in the UK (London to be exact) so I don't know if that's any help to you based on where you live. I can send you a more detailed private message if you like with brand names and more information. Quite a lot of info in this thread in previous posts but still happy to help more if you wish.

#37 Shelley Ensz

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Posted 08 December 2012 - 12:15 PM

Hi Nickisboi,

Congrats on getting enrolled at the gym. That's a nice, healthy step in the right direction because exercise is beneficial for most of us.

You know, if you feel headed for a panic attack over attending the gym, you can simply use your makeup. Only very rarely will I head out the door without my face makeup, and I always cover up my neck scar, either with makeup or clothing. Not because I'm ashamed of it or embarrassed by it or even obsessed with it, but only because I can, and it allows me and others to focus our attention on other things. It doesn't entail any emotions, any upset that I have a scar to hide, not even any pride in having a cool scar to show off. And certainly, its not my only scar, by far. Probably other people wouldn't even notice it, because it is probably a thousand times more noticeable to me. But who cares? It's my scar and I can do with it what I like, show or hide, as I please.

Frankly, if it were me, I think I would separate the whole gym thing from the whole morphea thing. I would make a plan to wear makeup coverage for the first year at least. Get hooked on getting in shape first. The endorphins from a good workout may help with your overall anxiety, and then it might be a natural transition instead of a forced one, probably just one day accidentally forgetting to put the makeup on, only realizing it later on, and then coming to the grand conclusion that the morphea doesn't matter a whit, either to you or to anyone else. Of course, then you realize that all the worry about it was totally wasted time and effort and you feel bad about that for about five minutes of even more wasted time and effort, and then you decide it doesn't matter -- because you are still floating on endorphins from your workout and better able to handle everything.

So try not to throw the baby out with the bathwater. You don't need to overcome the whole body dysmorphic disorder at once. It's perfectly okay to heal gradually while you are getting healthier. But however you approach it is perfectly dandy with all of us, as we'll support you all the way in healthy decisions.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#38 nickisboi25

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Posted 13 December 2012 - 04:05 AM

Hi Shelley,

Thank you for the really thoughtful reply.

Endorphin's! Hearing that word a lot from my friends. I'm sure once I get going I'm gonna love it...it's just getting going. I'd like to not use the makeup for the gym at all but maybe I'm just being too hard on myself and thinking I'm Superman. We'll see how I feel but like you said, the choice is all mine. Sometimes I forget that. It's so easy to feel like this disease takes all your choices away from you by being essentially, uncontrollable in itself, but you've hit on a very important point that some choices are still mine...and forever will be :)

Forgot to add, I've posted a picture of my Morphea in the 'Skin Involvement' album ;)

#39 Amanda Thorpe

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Posted 14 December 2012 - 04:47 PM

Hello Achilles

Welcome to the forums and sorry for my late reply! I also have morphea patches, mine are on my legs and I have over 10 of them, some of which are bigger than the palms of my hands. As I also have systemic scleroderma I have not been able to pay them much attention.

I hope you get on well with the make up, let us know won't you!

Take care.
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