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Burning sensation and pain in toe...any relief?


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#1 TamaraB

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Posted 03 November 2012 - 06:20 PM

Hi everyone, hope all is well!

I have Raynauds of the hands and feet, at work my feet usually stay cold, despite closed toe shoes and thermal socks. Apparently at some point the middle toe on my left foot got too cold and started staying blue and red and VERY achy. I finally went to the doctor for it about 2 weeks ago. They did a venous doppler (no clots!!) and an arterial doppler but I haven't gotten the results yet (I do know that the waveforms from the arterial doppler are much lower on the entire left side than the right and the waveform for my left foot is just barely above a flatline. I have no idea what that means or if it will help with suggestions) For the past few days my toe has been burning and throbbing. It is very sensitive to the touch, even the sheets rubbing it hurt. Tylenol isn't helping with the burning...anyone have any suggestion that might provide some relief?

THANK YOU!!!

#2 Shelley Ensz

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Posted 03 November 2012 - 08:21 PM

Hi Tamara,

I'm sorry but I couldn't venture to say what might be causing it, or what might help. It sounds very painful. Have you considered calling your insurance or healthcare nurse line, or called or visited an urgent care center? You'd think they could/would do something to improve the circulation, wouldn't you?

In the meantime, you can scrounge around on our main site and make sure you aren't doing anything at all that will inhibit blood flow or worsen attacks of Raynaud's. For example, stay entirely clear of nicotine, caffeine, and all vaso-constricting meds or herbs. Be sure to stay very warm, from head to toe. Drink only warm, non-caffeinated beverages, avoiding ice cubes and anything that is cool in any way whatsoever. Also stay away from very hot things as they can also cause attacks of Raynaud's; so for example, take a warm shower but not a very hot one. See Raynaud's Prevention, and put to mind becoming our forums expert on the subject, okay?

But if I had a toe that was burning and throbbing, without relief, a few weeks of waiting for test results would be totally unacceptable. So I hope you get some answers and find some relief SOON.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Joelf

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Posted 03 November 2012 - 11:56 PM

Hi Tamara,

Like Shelley, I'm afraid I can't suggest anything further to help you with the pain that you're experiencing in your toe; it sounds excruciating and I'm so sorry. I do hope that once the results of the arterial doppler are known, your doctor can prescribe something to give you relief from it.

Possibly some of our other members may be able to give you some advice.

Kind regards,

Jo Frowde
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#4 TamaraB

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Posted 04 November 2012 - 08:51 AM

Thank you Shelley and Joelf!

Shelley, I found an article in the link you provided about Raynauds...it was very helpful, I think that it may be chilblains, it sure sounds like what I am experiencing. Chilblains are caused by an abnormal body reaction to the cold, then the area warmed too quickly (i.e. HOT water, or directly in front of a heat source). If it is okay, I would like include a link to Chilblains, the "medical definition" and symptoms for any of our other friends with (or even without) Raynauds.

Thank you so much!

#5 Joelf

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Posted 04 November 2012 - 10:12 AM

Hi Tamara,

It's good news if you've solved the mystery of the cause of your painful toe!

I've had chilblains in the past and can really sympathise with you; they can certainly be very painful!

Here's hoping that you soon find relief from them!

Kind regards,

Jo Frowde
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#6 Amanda Thorpe

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Posted 05 November 2012 - 09:58 AM

Hello Tamara

Prior to realising Ma has Raynaud's she had chilblains and I remember how painful it was for her. She no longer works so no longer has the problem of being out and about with overly cold feet hence no chilblains anymore!

I hope you get relief soon!

Take care.
Amanda Thorpe
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#7 Shelley Ensz

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Posted 05 November 2012 - 12:49 PM

Hi Tamara,

Okay then I take that back, you can become our official forums expert on chilblains, instead. Has it settled down at all for you, yet? I am sending more WARM hugs your way in hopes they will assist in the treatment.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.