Posted 16 March 2007 - 06:40 AM
Posted 16 March 2007 - 07:16 AM
Welcome to Sclero Forums, we are very glad to have you here. I am sorry that your daughter has en coup.
I have no medical training at all, but it would be more likely that this is due to dental problems (such as teeth grinding in her sleep) or stress (clenching jaw, causing muscle tightness) or progression of the en coup (spreading down farther) rather than a side effect of medication.
It would be necessary to contact her doctor to sort it all out, of course. Unless it is a tooth abcess, it can probably wait until next week, I would think. But do not discontinue the meds with the thought that they are the cause (unless or until the doctor confirms that idea); more likely, they are preventing the situation from being even worse, if it is due to the en coup.
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Posted 16 March 2007 - 07:26 AM
Posted 20 March 2007 - 02:24 AM
Posted 20 March 2007 - 04:32 AM
Welcome to the forum! Sorry to read that your daughter is suffering from morphea as well as those treatments. It certainly doesn't sound like any fun at all! She's lucky to have you there with her.
I took Methotrexate for 3 years and beside the tiredness after the injections, I did notice any other side effects. BTW, the tiredness got less and less the longer I took it and by year 3, I felt the same way after the shot as I did before giving it. The cold fingers and toes as well as the jaw pain and smaller mouth opening cold be developing symptoms of the scleroderma. Please bring this up with her doctor. I am providing another posting that discussing the small mouth opening and provides some exercises for the mouth. Your daughter might find these helpful. When I had this problem, these exercises were extremely helpful.
Please keep us informed on how your daughter is doing.
Big Hugs to you both,