Hi everyone! I'm glad I found this group! My name is Haley, and I'm 22.
Here's my story, I'll try to keep it as brief as possible (I tend to ramble!).
I've had Raynaud's for years. Recently saw a dermatologist for an unrelated thing, he mentioned I might have CREST and should be seen by a rheumatologist- Raynaud's, trouble swallowing, and the tiny red dots on my hands are my CREST symptoms. But also extreme fatigue, digestive problems, and muscle and joint pain. I saw the rheumatologist today, and she agreed. We're waiting for all the blood results to come back, then another appointment.
But I have a whole bunch of other symptoms, symptoms that generally aren't listed on regular symptom lists I've found online, but seems like some people may have these issues. So right now I'm basically just grasping to see if other people experience these issues with CREST/Limited Scleroderma, to see if they are at all related. Since I feel like a total hypochondriac, and up until recently, all my doctors have made me feel this way. I apologize if any of this is covered in another forum, I haven't browsed around yet.
Here are my main complaints:
- General ill feeling most of the time
- EXTREME fatigue
- Night sweats
- Intolerance to cold (not just the Raynaud's on hands and feet)
- Weak feeling, especially in arms
- Back/shoulder/neck pain
- Digestive issues (nutritionist thought maybe I had gluten and/or lactose intolerance, low stomach acid...)
- NO libido what-so-ever, usually
- Intolerance to alcohol (weird, I know)
- Etc. (more minor things)
I also have interstitial cystitis.
Also, I know the libido thing may not be openly discussed in these forums (understandably!), but if anyone has advice/thoughts/similar experience on that matter with CREST, please feel free to send me a PM. This is probably the most complicated issue I have because it interferes with my relationship greatly.
Anyway, I apologize for the lengthy first entry! Once I start typing, I can't stop. :)
I'd really really appreciate any information and knowledge anyone has to offer, and am interested in hearing if anyone else has similar issues with CREST.
Thank you!! :)