I have only recently found this site and am finding the information really helpful. I am 54 and was diagnosed with morphea by my GP a couple of years ago when I developed a large oval patch with lilac edges under my breast followed by a couple of others on my trunk.
I had already suspected this was the diagnosis after looking up my symptoms on the web and readily accepted the reassurance that it would clear up in time and no treatment was necessary. Over time more patches have developed all on my front and back plus one patch on my inner wrist. Some of the patches are really itchy and GP has given me some steroid cream to apply which has had some limited effect.
However late last summer I also developed a lot of joint pain plus fatigue. I had a number of routine blood tests plus an antibody test which were all within normal range.
Since then the joint pain has increased especially in my arms and hands . I am no longer able to straighten fingers or make a fist and my fingers are painfully curled all of the time. I am also unable to bend both wrists and my lower legs are painfully stiff and my toes feel similar to my fingers. It has also become difficult to stand from a sitting position and my joints stiffen if I stay in the same position. Night time is especially painful.
My GP referred me to a rheumatologist who initially felt the problems were due to trapped nerves in my neck however an MRI scan has now ruled this out and I am awaiting a further appt.
I am just wondering if any of my problems could be related to the morphea. The rheumatologist was not really interested when I told him I had this.
Any thoughts or advice would be greatly appreciated.
Thanks and best wishes..