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Raynaud's study

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#1 chockers


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Posted 25 March 2013 - 10:39 AM


Just to say on Thursday I went with my son ( 5 hours on the train ) to the Raynaud's Study  in Treforest in Wales.


As our son lives by, it was very interesting seeing how long my hands took to warm up. It's a PHD study like our son is doing (which is why he wanted to come.) It's never been done before.The chap is doing a paper which will be published.Then he is hoping to make gloves to help us. He was very interested in what gloves I had and what I liked to wear. It is also a very useful study to link in with any drug study .


Our son's hands were compared (he is fine) and were scanned and cooled down and warmed up and photos taken every two minutes.


I'm going to be called back.



#2 Shelley Ensz

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Posted 26 March 2013 - 01:11 PM

Hi Christine,


That study sounds very interesting. Thank you for participating in scleroderma research -- we all appreciate it.


And it must be great to have your son involved as well, and to know that your son's hands are fine.



Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
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#3 Joelf


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Posted 27 March 2013 - 01:10 PM

Hi Christine,


Thanks for letting us know about the Raynaud's study and it sounds as if it is very interesting.


Do let us have an update when you next go back there.


Kind regards,

Jo Frowde
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#4 Amanda Thorpe

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Posted 28 March 2013 - 05:10 PM

Well done to you Chockers for making the effort and being involved! :emoticons-thankyou:


Take care.

Amanda Thorpe
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