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#1 georgieoz

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Posted 26 March 2013 - 03:02 AM

G'day, it has been a long time since I posted.  I've had a lot of changes, some good some a tad worrying.

 

I was wondering if anyone can shed some light on my latest symptoms?  My face is burning hot; it feels like bad sunburn, the skin is red and hot to touch, and severely dehydrated.  It looks like I aged overnight. The skin took on a leathery appearance.  Is this sclero or is it related to my newly diagnosed nodules in the thyroid gland?

 

The report said 'multiple nodules one being 2.7cm which has interior vascularity?  I'm not sure what all that means but at this point tis the least of my concern; I'm more distressed with this constant burning face. Anything like cream or water just evaporates off it. Ugh. Can someone shed some light on what's going on here, please?

 

Thanks,

 

Georgie



#2 judyt

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Posted 26 March 2013 - 01:11 PM

g'day cobber!!

 

Couldn't resist the greeting!!   Well, actually we all here probably wouldn't know what to say about all that!!   Sounds mighty uncomfortable to me but really, since I am not qualified to make any sort of medical comments I would have to suggest you get off to your Doc lickety split and ask them.

 

Sclero is a vascular disease and my doctors are forever watching for varices inside me, so I guess it might be something to do with the sclero but only they would know (or not know as is often the case).

 

My sister had a lumpy thyroid which was removed but I am not aware of her ever having this sort of thing happening.   So that is the sum total of my knowledge.

 

However, on a more serious note, it sounds horrible and I am very sorry you have to put up with it.   From what I have heard thyroid disturbances are tricky things so you really do need to go back and talk about it further I think.

 

Best of luck, and good wishes

 

Judyt



#3 Shelley Ensz

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Posted 26 March 2013 - 01:31 PM

Hi Georgie,

 

I'm sorry that you have thyroid nodules and a burning, leathery face. It's really impossible for us to tell what's causing all this, of course, because none of us are doctors, so you do need to make a doctor appointment to have them examine and assess the situation.

 

Your symptoms might be due to the thyroid issues and/or to scleroderma or other problems. If it happens to be due to an overactive thyroid, that would probably be good news in your current circumstances, because in Treatment for Thyroid Nodules, MedicineNet says, "If a nodule is causing hyperthyroidism, it is usually benign." (Benign means not cancerous, of course.)  However, you really can't be sure of anything (either good or bad) until you have your doctor's assessment.


You are going to need to see your doctor, because these are new symptoms for you and they may provide a clue as to the underlying problem, as well.  And please let us know what you find out,okay?

 

:emoticons-group-hug:


Warm Hugs,

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#4 georgieoz

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Posted 26 March 2013 - 09:02 PM

Thanks judyt and Shelley for your input , first off I just have to say to judyt your greeting of g'day cobber was soooo delightful I haven't heard the g'day cobber greeting in years.   T'was like music to the ears of a true blue fair dinkum Oz  ! lol lol ....

Yeh Shelley after I posted in to the site I realised too late that it really was not something ya could help me with.   I guess I was hoping someone else might have had the burning thingo ... I spoke to my nurse today she thinks also( what judyt said)  that it could be  the sclero (vascular side of it) that is burning my face but says thyroid could not be ruled out yet until I get tested etc , have an appointment with doctor tomorrow ....

She also reminded me that before I went into sclero renal crisis that I burned then but not my face; my whole abdomen burned went red for about a month then I peeled then renal crisis; it has been suggested that although scleroderma effects everyone differently in my case burning could be a tell tale sign of sclero flare ups ..but of course no proof of that just a theory .... thanks ladies



#5 Robyn Sims

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Posted 27 March 2013 - 03:50 AM

Hi Georgie,

 

Seems that this is in the too hard basket for the time being.  Thanks Shelley and Judyt for your reply.

 

Hope this burning settles down soon, must be very distressing. 

 

Kindest regards,

Robyn



#6 Joelf

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Posted 27 March 2013 - 01:07 PM

G'day Georgie!!

 

How lovely to hear from you again, although I'm sorry that it's because you're suffering such unpleasant symptoms.

 

As the others have advised, I would also suggest that you make an appointment to visit your doctor to investigate things further.

 

I do hope that he can give you some help and that the horrible burning improves very soon.

 

Kind regards,


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#7 georgieoz

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Posted 27 March 2013 - 11:11 PM

I went to the doctor today, he was fairly sure that the burning is scleroderma; I have found that putting an ice pack wrapped in a towel best relief .......most of the appointment was taken up by my high blood pressure it was 237/123. Luckily I had a BP tablet that drops BP instantly in my bag so once we got that lowered we only had a short time left to address the nodules. 

 

Anyhow cutting a long story short, he said to have a blood test first to check the thyroid function and then he said he would need to do a biopsy ... if results are good meaning thyroid function test good and it's benign then given my medical history we would just monitor it etc; if not good results we would cross that bridge when we get to it .... so that's that; I'm just pleased to be getting relief from the ice pack it's heavenly ......



#8 Robyn Sims

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Posted 28 March 2013 - 05:51 AM

Hi Georgie,

I am pleased to hear that the ice pack is helping.  Perhaps as the weather cools down over the next few months this will help also.

 

Insofar as the nodules are concerned, it looks like and wait and see, which is the best policy.

 

Kind regards,

Robyn