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Biomarker for Diffuse Scleroderma skin has been discovered!


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Hypo pigmentation (loss of pigment)


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#1 ajh

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Posted 05 April 2013 - 06:08 PM

I've had SD for 30 yrs.  I have been losing pigment on my chest and shoulders for a few years in freckle like patterns.  These last years I have a large patch on my right upper arm.  It started small but now covers the whole arm.  Now I'm seeing a similar spot starting on my forearm.  These areas itch as they spread and the final skin condition is white and thick. I have an olive complexion so these areas stand out strongly.

 

Anyone know of a way to slow/stop this?  Any help for the itching?



#2 Joelf

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Posted 06 April 2013 - 01:21 PM

Hi Ajh,

 

Firstly, congratulations on coping with scleroderma for thirty years; I'm a comparative newcomer, having only been diagnosed for almost four years.

 

I've included a link to our medical pages on Systemic Scleroderma: Hyperpigmentation and Hypopigmentation which I hope that you'll find interesting and helpful and will give you more information.

 

It's very likely we may have other members who have experienced this condition and hopefully they'll be along to give you some more first hand advice.

 

Kind regards,


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#3 Cathey

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Posted 06 April 2013 - 05:23 PM

I have vitiligo. Started with patches in the bend of my knees when I was nine years old. I am now fifty-five years old and am completely white. It was a relief from being spotted. I was told nothing could be done for this condition. Do you know of any treatment?



#4 Joelf

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Posted 06 April 2013 - 10:50 PM

Hi Cathey,

 

Thankfully, I don't suffer with this condition myself; however, I've included a link to our medical pages on Vitiligo, which I hope you'll find helpful and interesting.

 

Although there is no known cure for it, we may have other members who will be able to give you more first hand advice.

 

Kind regards,


Jo Frowde
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#5 miocean

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Posted 07 April 2013 - 05:14 PM

Dear ajh,
I sympathize with the itching as I know it can be intolerable. It is an issue many have sought help with over the years with no real answer. It is hit or miss with lotions, some may help a little. For me, after about five years the itching stopped.

Some have used oatmeal baths but they did nothing for me but leave a mess in the tub. Try not to take really hot baths or showers, moisturize immediately after bathing, and if you can, bath less frequently. Also, invest in cheap backscratchers and keep them all over! Door jams work well, too.

There are many different changes in skin pigment. I became unnaturally dark. I looked like I had been on vacation even in the winter with my light hair and eyes. I did spend time at the beach but was extremely careful and covered up. The darkness has gone away over the years as well. My skin was very hard all over, it has softened. All of this took about 5 years from onset.

You are an inspiration for having dealt with this so long!

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#6 Cathey

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Posted 07 April 2013 - 09:01 PM

Is vitiligo a symptom of scleroderma?

#7 Joelf

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Posted 07 April 2013 - 10:58 PM

Hi Cathey,

 

As much as I love telling my doctors how to do their jobs, I actually have no medical training, but as far as I understand it, Vitiligo is a skin condition which can affect Scleroderma sufferers as part of multiple autoimmune syndrome (MAS).  Rather like Raynaud's and Carpal Tunnel Syndromes, it can be part of the whole autoimmune package or may just be an isolated illness in it's own right. 

 

Kind regards,


Jo Frowde
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#8 ajh

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Posted 08 April 2013 - 05:44 PM

Thanks for all the replies.  I suspected the skin color changes/itching were just a new wrinkle. I do my best not to scratch.

 

I started with symptoms of SD when I was 16.  I was diagnosed at 21.  The disease progressed fairly slowly until 10 yrs ago. Not typical at all.... The last five have been pretty tough.  I know many of you deal with all the same issues I do.  So glad to find a forum where we can help one another.