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Hi my little case

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#1 fLn



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Posted 16 April 2013 - 07:29 PM




I apologize for my English, I live in Italy that's why it isn't that good =). I'm 24 nearly 25 and my name is Daja, I'm male and it's a Swiss name; I used to live there just in case anyone is wondering about my name. Since I'm here to share my case and talk about it to get some vital information let's get on to that.


I don't have a final diagnosis yet, but my dermatologist thinks I have limited morphea, everything started 1 1/2 years ago on a rainy evening my ex girlfriend found some dark patches on my back, 2 weeks after she looked at it again because I told her it was really itchy. So I went to my doctor, but instead of mine there was another guy since she was in vacation, he gave me travocort because he thought it was a skin fungus. I used it for quite a while and it seemed to reduce over time. At that time i had 3 patches the big on on my back and 2 little ones on my side. Last summer they nearly disappeared and the one on my back became little. I was quite happy about it.


This winter it started again and the patches became bigger again till then I used some shampoo and stuff my doctor gave me nothing particular. I still went to control and my bloodtest was positive to autoimmune stuff. I think it was anti-histone anti-dsdna and anti-pcna. After that I had a biopsy on the big one and it had no positive result on autoimmune stuff but on hyalinosis and fibrosis. The doctor sent me to the internist and this one sent me to the cardiologist, I have still to do that visit, but the first tests were good and not of any concern (regarding my heart) and they said they don't think I have systemic sclerosis.  I'm pretty fit since I was an athlete when I was younger, like from 12-19.


Today I'm going to the dermatologist again because I have some strange new symptoms. I had some red bruises on my hand on the outer side of it and it hurts a little when I use them. The other thing is I got new patches, just little ones like 1-3 cm most of them 1/2 centimeter, but everywhere like on my chest on my hands on my legs. Another thing is directly under my eyes I'm red too; it doesn't hurt or anything but the skin colour changed and you can see the skin itself has changed too. I actually realized where the patches are because they are itchy.


I'm using cortizone stuff to put on my skin which had limited success now but I don't have to scratch that much. So I'm wondering if any of you who have generalized morphea when it began had little patches too or if they were big from the beginning like mine and spreading out?


Fact is, this sclerodermia, or whatever it is, is getting me nuts. I think about how it will be if the patches are going to be bigger, if I have other stuff I have to live with, and so on.  I'm happy to have a girlfriend who cares about me but she is in Switzerland and I see her rarely. My parents aren't that supportive since they don't really understand whats going on or they try to deny it. I'm still studying, that's why I'm often at my parents place.


So in the end I just wonder if my case is similar to other cases and how it was with you and what you would consider doing to help getting this whole stuff better? I always was pretty self confident since I'm good looking (at least I think I am :) ) but being I'm unsure what's going to happen and what it is. It's just hard times right now.  I hope I can find some comfort in this forum and give some back later when I'm better again.


I'm really looking forward to hear from you guys because every little information and help is really appreciated!

#2 Joelf


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Posted 17 April 2013 - 11:49 AM

Hi Daja,


Welcome to these forums!


I'm sorry to hear that you're having problems with Morphea and I've included the link to our medical pages to give you some more information.


Obviously, it is difficult to predict how the Morphea, or any other Scleroderma symptoms will progress; it could be that you will never suffer any more symptoms than you're showing at the moment, or you could find that other things develop. Unfortunately, Scleroderma does present itself in many different ways, so it is quite difficult to predict what course the disease will follow.


I've included links to another couple of threads on Morphea here and here which I hope will give you some more information. Thankfully, I don't suffer with Morphea myself, but we do have many members who do and I'm sure they'll be along to give you some first hand information.


Kind regards,



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#3 Shelley Ensz

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Posted 17 April 2013 - 04:48 PM

Hi Daja,


Welcome to Sclero Forums!  I'm sorry you have morphea and also that you have more concerns about it, too.  Did you know that there are more treatments available for morphea?  They are currently recommending UVA1 phototherapy as the "first line" treatment for most cases of morphea now. 


There are many topnotch scleroderma expert centers in Italy. No reason to settle for a little cream when there are even better and more effective remedies available.



Warm Hugs,

Shelley Ensz
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