Hi Shelley ,
I decided to get off the Plaquenil topic and into the name game. Gareth's old rheumatologist and primary care physician had him listed with UCTD. I thought his new rheumatologist also felt the same. When I took him to the new Pulmonary doc (different medical group than the Rheuma) he has him listed as Mixed Connective TD. Yesterday, while at the new Gastro doc (same medical group as Rheuma), I noticed he is listed as Diffuse CTD. I suppose it doesn't really matter as long as the symptoms are being treated? Last night, I tried to read and figure out the differences but my brain didn't get very far!!
I did read where Sjogren's can cause havoc on the esophagus and stomach, too. I didn't know that. He's developed that over the past couple of years, too, on top of the positive blood work for Sclero and residual esophageal dysmotility.
He is scheduled for an Endo and Colonoscopy in May. It's been two years since the gallbladder surgery and the new Gastro doc wants her own look at his insides. When she asked Gareth if he hurt, he did nod *yes* and pointed to his stomach.
Take care, Everyone.
Mom to Gareth, 24 years old, DS/ASD