In my earlier years in this line of work, I heard of a lot of cases of people with morphea being told they had systemic, that they had just a few years left to live, and that they should put their affairs in order. Since the more widespread use of the internet, I think this has become less common -- even the doctors are more educated about rare diseases thanks to Dr. Google -- but it still occurs.
The worst one I personally encountered was a patient in the Ukraine who as a teenager was told she had systemic and only a few years left to live. So she put everything on hold, her schooling and all her plans for the future. But when she described her illness to me, I thought it far more likely that she had morphea, and I encouraged her to see a scleroderma expert. She had to travel to Israel to see a Russian-speaking scleroderma expert, who confirmed that she did, indeed, have morphea -- and thus a brand new future with unlimited possibilities.
Really, it's astounding to labor under the illusion that you don't have long to live, but then discover a normal life ahead of you, as far as you can see! Do your best to help your daughter not get mentally snagged in looking through the rear view mirror now, because It's going to require all her emotional resources to refocus on looking ahead, with optimism and joy.
I have also been given a few warnings that I only had a few more years left to live. The first warning occurred in my early 20's, the second in my mid-40's. Now I'm in my mid-60's. Now I actually feel blessed by those experiences. They served to help realign my priorities in life, help me get in touch with the most important things, and still serve to make me thankful for every day. Your daughter has encountered a near-death experience, so to speak, the same as you every time a driver cuts you off or comes too close to your bumper on the freeway. Sure, you can say, this is different, and it is, but is it really?
The one binding thing we share as humans is the fore knowledge that our life as we know it on earth is limited. And only death row inmates know the exact date of their departure. I am very glad that your daughter has an exciting, fresh new beginning.
Please help her see that her time spent laboring under a death sentence was not wasted. Show her how it has served to make her better in ways that will bless and guide her, for all her remaining days. She already knows the hurt and disappointment this has caused. Such hurt cannot be erased; I cannot make light of that, as I know the angst she has had to cope with. But if she can cope with that, she can cope with anything. The real trick now is learning how to "see" the future, and to begin believing in it, again.