Hi folks, I hope it is ok that I joined, as I have a few questions about diagnosis. Currently, my only diagnoses are hashimoto's thyroiditis and fibromyalgia. A year ago, my GI doctor ran ANA testing on me, which turned out positive 1:640, and I was sent to a rheumatologist for evaluation and more testing. His tests showed extremely high anti-chromatin antibodies and just over the range for centromere antibodies, along with ss-DNA antibodies. At that time, I was unaware what the centromere antibodies were, and hadn't thought much about them for the past year, but as I read more and more I wonder if centromere antibodies are found in people who don't have CREST. The rheumatologist said I probably had drug induced lupus at some point, and that was the reason for the high chromatin antibodies, however he never really addressed the centromere antibodies.
My symptoms to date:
A long history, going back to childhood, of really cold hands and feet... sometimes they turn colors or get really hot after any prolonged exposure to cold. I'd say my nose, ears and face are somewhat affected by this sensation too. I figured I had Raynaud's phenomenon but didn't know much about it... later I attributed it to my hypothyroid.
Other miscellaneous symptoms, which haven't been attributed to my thyroid, include gastritis/duodenitis and IBS pains; difficulty breathing at times, typically seasonally in spring and summer, with last summer topping off with chest pleuritic pain that was never explained; extremely dry hands and feet; peripheral neuropathy of unknown reason; orthostatic hypotension episodes that sometimes lead to fainting. I also have had a year's worth of unexplained "adult acne" and random red spots showing up all over my body, including face, lips, arms, hands, chest.
I guess I am now wondering if I could possibly have CREST, due to the centromere antibodies, the GI problems, lung issues and possibly red spots on body? I haven't seen any sclerodactyl or calcium deposits at all. Is this something I should discuss with my primary care?
Thank you for reading and for any advice.