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Centromere Antibodies?


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#21 msjess

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Posted 13 June 2013 - 12:03 PM

I have posted a few photos of my red palms and soles that itch and burn, and the skin discolorations on my arms primarily.



#22 msjess

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Posted 15 June 2013 - 10:32 AM

Well, in case anyone is reading this, I do believe I have figured out what is causing my most recent problem - erythromelalgia. Apparently it is closely related to Raynaud's phenomenon. I imagine that it happens pretty often in scleroderma, as Raynaud's does. Perhaps you guys could include a page about it in your information on similar skin diseases. Here is an example of the raynauds.org site that explains it http://www.raynauds....thromelalgia-em



#23 Shelley Ensz

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Posted 15 June 2013 - 11:15 AM

Hi Msjess,

 

We have a few members who also have erythromelalgia, such as Amanda and Buttons. Although Raynaud's and erythromelalgia appear to be polar opposites, one precipitated by cold and the other by heat, they have a lot in common and can sometimes occur together.

 

The important thing to start with would be to get it properly diagnosed. One way they do this is to soak your hands in hot water for a spell, so they can see an attack in action, much like the cold water test for Raynaud's. Since that is fairly straightforward, you might want to consider offering to readily "prove it" in your doctor's office, to get the ball rolling on the topic.

 

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#24 bigprimmer

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Posted 10 March 2014 - 03:33 PM

I have been having nerve pain so my orthopedic surgeon sent me to a Neurologist who basically ran some blood test that came back positive for ANA 1:16 and Anticentromere B at an 8 ( anything over 1 being considered high) so I was sent to a rhematologist, she looked at may nailbeds on my hand with gel and a magnified glass and checked my skin for thickening and said the test is a false positive ( I was tested twice and both times the labs came back the same) since I have no symptoms. My question is do many people test positive for anticentromere B and never develop any symptoms for limited scleroderma?  I do have hypothyroid and Fibromyalgia.



#25 Joelf

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Posted 11 March 2014 - 08:13 AM

Hi Bigprimmer,

 

Welcome to these forums!

 

I'm sorry to hear that you suffer with Thyroid disease and Fibromyalgia and I can understand your concern regarding your blood tests. However, blood tests are by no means conclusive and it is certainly possible to have positive antibodies and yet never go on to develop full blown Scleroderma and vice versa, as many of our members can testify. I've included a link to our medical page on Autoantibodies, to give you some more information.

 

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#26 Amanda Thorpe

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Posted 18 March 2014 - 02:34 PM

Hello Bigprimmer

 

Let me second what Jo has said, being someone with negative blood work and scleroderma. I have had scleroderma for 7 years and the whole time my blood tests, ANA & SCL-70 have been negative. During that time many people have visited these forums with positive blood work but no symptoms wondering the same as you, they never developed any.

 

Take care.


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