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#1 miocean

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Posted 28 May 2013 - 03:18 PM

I had two appointments today with new doctors and actually have a good feeling about this!! :woohoo:  I hope I'm not being premature....

 

Many of you know I have experienced frustration with my multitude of doctors and no co-ordination among them about my care. Over the years I tried to keep the majority of my doctors at one local medical center, aside from my scleroderma specialist, thinking this would make everything easy. However, my Primary Care Physician was not a part of this group and is an overworked clinic doctor, a good doctor, but my health issues are beyond what he can manage. I never sought another primary care physician until now because one of my doctors told me my case was so complicated it might be hard to get anyone to take me on. After looking into some options, I asked my nephrologist who he would suggest that might take me on as these two doctors need to communicate with each other well, and I  went to him today. I had a great consult with the recommended doctor, gave him a brief rundown of all of my complicated issues, health and communication-wise and he said "I am not afraid of you."  :D  I liked everything about his office and will try him and see how it goes. He takes insurance and if it doesn't work out after a period of time I can always try something else.  :P

 

I also saw a new cardiologist, also recommended by my nephrologist and my chiropractor. He is part of the group my previous cardiologist belongs to but has no problem with my switching to him. After a brief summary and a look at recent tests including my right heart catherization, discussion of pulmonary hypertension and lung transplant evaluation, he concluded that my cholesterol level was not an issue to be concerned about. I have no heart disease history in my family, my left heart catherization in 2010 showed no blockages, and in a couple of months I will have a carotid artery sonogram. Well, what have I been saying all along...? :emoticon-bang-head:

 

So it sounds good, doesn't it? Only time will tell but I am feeling more positive about things. And the moral of the story is, don't give up looking for the right fit of doctors.

 

We'll see how this goes as I see the scleroderma specialist next week and go for the initial lung transplant evaluation the week following. 

 

miocean


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#2 judyt

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Posted 28 May 2013 - 03:32 PM

Hi mio,

 

Great to hear that you are happy with the changes, for the meantime anyway.

 

It is so important to get a practitioner you can feel comfortable with and can talk to and get sensible and informative feed-back.   I went to my doctor this morning because for the first time in nearly 3 years I am starting a new ulcer on my ankle.   She is so good to talk to, I know she finds my problems challenging but she has admitted that she finds me "interesting" and I would rather that than her be afraid of me.  She is also empathetic, and that really helps I find.

 

Isn't it great to hear that some part of you is in good shape.   After my heart repair, TOE and catheterisation in 2010 I was told that my cardiac blood vessels were the cleanest my doctor had ever seen in somebody my age. :yes:

 

My PBC might get me in the end but at least my heart will keep working.

 

Best wishes for your upcoming transplant evaluation.

 

Judyt



#3 Sweet

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Posted 29 May 2013 - 09:14 AM

Hey, this sounds like good news!!  Yay!  :emoticons-clap:


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Pamela
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#4 Joelf

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Posted 29 May 2013 - 11:02 AM

Hi Miocean,

 

It certainly sounds promising for you with your recommended doctor and cardiologist and I'm so pleased to hear that their outlook is quite positive. It makes all the difference to have a medical team in whom you can have confidence.

 

I'm feeling so happy and relieved for you! :)

 

Kind regards,


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#5 Margaret

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Posted 29 May 2013 - 05:35 PM

Hi Miocean ,

 

I am happy for you !  You deserve the best of the best !  :emoticons-clap:

 

Gareth had to switch many of his doctors, due to insurance issues, this spring.   So far, I like them all, especially his new Gastro doc.  I've been complaining for over a year now, that Gareth would get up in the morning and act fine.  After he eats, he just shuts down and facial tics start.  A blood test showed that his blood sugar dropped a bit, instead of rising after his meals, so they told me it was Hypoglycemia. 

 

Well, last Wednesday,  he had an Endoscopy by his new Gastro doc.  She could see the esophageal spasms and had to stretch his lower 1/3 of the esophagus because it had become so constricted.  His *total stomach shows signs of inflammation* which she said would cause a nauseated, painful, or just chronic discomfort, depending on what he ate.  My goodness, how would I have known that?!?!?  He always *washes down* his meals....drinks so much milk, juice, or water.  Anyways,  we're still waiting to see if H Pylori is involved in his stomach, but she feels it's from the anti-inflammatory meds.

 

Take care, Everyone.  I'm so glad you're all here to help me!!   :thank-you:

Margaret



#6 judyt

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Posted 29 May 2013 - 10:09 PM

Hi Margaret,

 

It must be so hard for you to try and sort out what all these strange sensations are.   It is hard enough for the rest of us to judge when we need help with something that seems to be different from before.

 

You are the best Mother a guy could ask for I am sure. :balloons: and a hug for Gareth :emoticon-hug:

 

Judyt



#7 Shelley Ensz

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Posted 30 May 2013 - 10:07 AM

Hi Miocean,

 

I'm glad that you've managed to get some new doctors. It isn't easy to change and to wonder whether or not a new doctor will work out, so I'm glad that at least your initial experience has been good.

 

Last fall, one of my surgeons told me that in their opinion, people should change doctors every year because it gives a fresh look at their situation.  And really, what do you have to lose? You can always go back to your old doctor, or try another new one, if the experiment fails.

 

I think there is a benefit to staying with certain doctors, and it used to be that when you got a doctor, you pretty much stayed with them for life. Now there is so much turnover and insurance plan changes that it makes it difficult, and often impossible, to keep the same medical team for even a few years, not to mention, for life.

 

One rule of thumb when changing doctors is that if we aren't satisfied with the first visit, we shouldn't go back. That's because on the first visit they are trying to gain our business and hoping that we will be a repeat customer. So they are putting their very best foot forward.  If we are dissatisfied with their best effort, chances are excellent that we won't be any happier if they lapse back into business-as-usual behavior.

 

I've had some truly outstanding doctors over the years, and every one of them made a great impression on my first visit -- because they were in the habit of providing excellent care.

 

:emoticons-group-hug:


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Shelley Ensz
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#8 debonair susie

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Posted 31 May 2013 - 08:19 AM

Hi mi!

 

That is THE  best news I have heard in a LONG time, concerning doctors and their attitudes about your conditions! That TOTALLY  

ROCKS! :woohoo:

For the doctors to be on the same page with one another is going to bring you to a MUCH better place, w/regard to your better health; I can FEEL it!!

Sending Loving :emoticon-hug: s your way!  (...and thanks for sharing the awesome news w/us) !


Special Hugs,

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