Amanda, to tweak your line, "it was decided that my scleroderma is now stable, that's the term that was used which to me means I still have scleroderma but at the moment it's not active" -- I think it might be better phrased, "at the moment it is not getting noticeably worse."
After all, you still have all the effects of the cumulative damage for everything that has gone on, and often scleroderma progresses silently, so sometimes damage is accumulating even though we don't feel like we are on another downhill slide. And then again, sometimes it relents and sometimes it even improves a little in some ways but not necessarily in all ways.
Marsha, keep in mind that your specialist's definition of "all better" could be entirely different than your definition. It's easy enough for them to overlook or ignore the symptoms that you have to live with every minute of every day. They might be looking at a big picture of being relieved that you haven't yet developed x, y or z that they were worried about. They don't feel the fatigue and joint pain so to them those are just words, they are not a reality that has to be coped with all the time.
They might also be comparing you to another patient, perhaps one who just passed away. Then by comparison you are doing fabulous, simply because you are still breathing!
The doctor might be trying to say that the worst of getting worse might be over for you and that there are reasons now to be optimistic about your long term survival. That is cause for rejoicing, in its own right, but it does not mean you are better, or cured, or even entirely out of the woods.
Systemic scleroderma is unpredictable. It might ease up a bit, it often becomes stable for a spell, but never enough to allow you to skip out on annual exams.