It's been a couple weeks since my last update. In the meantime, I have developed phlebitis in my right leg. So I was sent to a vascular specialist. When I tried to discuss with her the burning/itching fingers/palms and soles of my feet, which has been relentless for a month now, she dismissed my idea that it was circulation related. I feel in my gut that it is either a form of Raynaud's that I haven't experienced before, or possibly chilblains or even erythromelalgia.
She took one peek at my fingers and dismissed me, saying, "People your age don't have circulation problems." I am 39, and actually have experienced what I believe to be Raynaud's since I was a teenager. My blood vessels in hands and feet swell up when I am experiencing this itching/burning in my hands and feet, and they tingle/prickle. I have really no sign of a rash, but the skin does turn bright red occasionally.
I did test positive ANA last year, including positive anti-centromere which my rheumatologist surmised was not interesting at all or worth following up. I have struggled a year with strange health problems, starting with pleuritis last summer, followed with increased stomach pains, and increasing acne/possibly hormonal issues. I am in hyperthyroid status, up from Hashimoto's thyroiditis, where I am typically hypothyroid. Mouth sores. Ear infections.
Now my hands are swollen all the time and incredibly stiff in the morning and they have had me crying because it hurts to grip pretty much anything. I also feel my hands are a lot weaker than they should be. My phlebitis isn't going away, and I have to wear compression socks for six weeks before they will consider anything surgically. I just wonder if I am having a form of vasculitis or possibly bad Raynaud's syndrome. But nobody has provided any answers yet - and I've seen my primary care physician three times over this, a dermatologist and now this vascular doctor.
I still can't believe she said that I am too young to have circulation problems. Especially since I am obviously having them, and it's showing up as phlebitis??
Oh, and to top it all off, the vascular lady told me to, "Stop reading so much," and when I was slightly upset she wouldn't consider helping me with my hands, I did cry. She then told me, "Most people are happy when they know something isn't wrong." ? Gah. It's not that I want to be sick. It's that I know in my gut something isn't right here and nobody is helping me!! I left the appointment feeling very frustrated, still.
Meanwhile I still have not heard from the rheumatologist that supposedly got my referral - and I imagine he won't see me either. I already found out my former rheumatologist sent a letter to my doctor saying he won't see me again.