Yesterday I visited a second center for evaluation for a lung transplant. Imagine this:
They ran on schedule!! :emoticons-line-dance:
I spent over an hour with the nurse coordinator going over my medical history. I was able to pull out the tests and labs that hadn't already been forwarded to her thanks to my handy-dandy binder system. She felt that even with the complications of the kidney transplant, scleroderma, pulmonary hypertension, and the damage to my esophagus the transplant doctor would still want to talk with me. The doctor spent a good amount of time with my husband and me and started by saying he wasn't going to tell me too much about transplant because I knew all about one from my kidney. He focused on the health issues that I am currently experiencing and what to do to figure out what exactly is going on and how to correct them, if possible. His feeling is that whether I am transplanted or not, there may be things that can be done to increase the quality of my life. He expressed concern that the anti-rejection drugs for the lung could be toxic to my kidney but is planning on calling my nephrologist to discuss it. My BMI is also too high for them (it was fine for the first center but all have different criteria).
They drew 20 vials of blood for the most extensive labs I have ever had. I will then be scheduled for all kinds of tests including and right and left heart catherization, endoscopy, colonoscopy, stress test, exercise echo, further testing on my esophagus, another CT scan because the one I had recently didn't have enough images (?), meetings with a psychologist, social worker, neurologist, etc. He is also getting me a Pulmonary Hypertension Specialist, which I needed anyway. There are a few reports from doctors and my dentist that I need to have faxed to them. After all of this, a team will determine treatment options and if I am a candidate. All be done in the next couple of months so it will be busy.
Wow! Can you imagine my amazement! Instead of blowing me off as not a candidate he seemed to be genuinely concerned about giving me the best possible outcome. And...everything will be done at the same center. All of my doctors in the same place!
Am I dreaming?!?
My first impression was extremely positive but I am yet to pass judgement since I am the one that everything seems to get mixed up and frustrating for. At the least, I am getting more than there's nothing we can do, I'm sorry, get a wedge pillow...
I'll keep you posted.