Shelley, I have considered that this may be related to the phlebitis. I really have. I also feel like it may be a septic arthritis of some type. It's scary how many different things it could be.
The pain is intermittent today, like a burning shock in a toe or my finger, and then there is all-the-time pain in the joints that feels like they are swollen and infected... like the blood is wrong or poisoned. I have this bad feeling that all of this recent stuff is directly related to my IV Iron Dextran infusion (May 23rd), as the weeks of burning/itching pain started immediately afterwards, then the phlebitis and joint pain.
I do know the second week-long course of prednisone did nothing to help it, and I am in worse shape today than yesterday. If I could get an accurate photo of what was happening, I could share it perhaps. I guess looking at my hands right at this moment I can see swollen veins in every finger that was NOT there just over a month ago. The tips of all fingers hurt, like pins sticking in them, or perhaps when I touch something there is broken glass in there. The joints are hot, red and swollen around the blue veins.
There is no real rash, but I do have random small spots of skin where it feels hard under the skin, and other spots that look like tiny skin-colored round blisters. The joints in every finger aches, and the big pad of flesh at the base of my thumbs also ache. Feet hurt but not as much as the hands now. I also am getting weak in my hands. I can't hold a book for longer than a few minutes to read and sitting here typing is extremely difficult.
If anybody has ever experienced anything like this I would be grateful for some advice. As I've said before rheumatology won't see me until Oct. 10th, my primary really knows nothing about any of this (she shrugged her shoulders and then offered an xray to check for arthritis and then did a lyme screen per my request), and dermatology said I need rheumatology.
Also, vascular said that circulation issues don't happen with people my age, and she just basically checked my pulse in my wrists and ankles, then said nothing more beyond suggesting it could be a neuropathy related to carpal tunnel?
Hematology as well said they didn't believe that the problems I am having are related to my IV Iron infusion but that I need rheumatology. I feel like the only way I can get someone to take me seriously is to go to the ER but even they may think I am just wacky for coming to the ER for something that primary care should be able to help me with...