Today I called and cancelled a left heart catherization that was scheduled 3 days from now at the lung transplant center. I have never cancelled any test in the past but I feel I was justified in doing so. My reasons are:
1. At the initial consult the transplant doctor said both a right heart and left heart catherization would probably be repeated. I see the pulmonary hypertension specialist next week and did not want to go through two different catherizations if it was determined I needed a right heart cath as well.
2. I called my nephrologist and asked if there were any special things I would need to know about the left heart cath in regards to my transplanted kidney. He said IV fluids would need to be administered before and after to make sure the dye left my system quickly. Although he made repeated calls to the transplant doctor, he was unsuccessful in reaching him. I do not want to risk any possible damage to the kidney.
3. There was no appointment to meet with a cardiologist prior to the procedure. I have had 3 heart catherizations previously (two for evaluation for the kidney transplant) and each one was after meeting with a cardiologist. Besides protecting the kidney transplant I have other issues I would like to discuss before the procedure. I would like them to know my medical history, what would be done if a blockage was found, make them aware that I have convulsive syncope and could have a seizure under extreme duress, and know how the closure would be made.
I emphasized that I am still open to having the procedure, but want more information/answers before I have it since it is invasive and involves dye. I spoke to the scheduler who said she would inform the transplant doctor.
In two days I go in for an echo that is done under exercise. I am also supposed to have a carotid artery sonogram and a 6 minute walk test before seeing the PH specialist but these are not scheduled yet.
I know I made the right decision but am slightly concerned the transplant center may view me as "non-compliant."