All of this is very interesting...
After being diagnosed with Euthyroid Graves Disease/Exophthalmos (that is a very hard word to spell!) Eye Disease, intensive testing, Including looking for a brain tumor, and several months of medication the endocrinologist I was seeing wanted to radiate my thyroid. I went for a second opinion and that endocrinologist looked at all my labs and notes and said he didn't think I ever had the disease to begin with. So guess whose opinion I went with? :P I was under a lot of stress at the time, eventually my eye returned to normal and through diet and exercise I went from 198 lbs to 145 lbs. after getting out of a toxic relationship. Again, I don't have any records from this and it was almost 30 years ago.
These recent tests were done by the lung transplant center. I also had several antibody tests run but I wouldn't know which one is for thyroid. msjess, what would the antibodies for thyroid be? They drew 20 vials of blood.
My ANA came back 1:320 speckled. Originally in 2004 it was 1:180 speckled. My scleroderma specialist just ran this test a couple of months ago and it was 1:180 diffuse which she told me meant "undetermined." (?) She also told me if my thyroid tests come back normal then I don't have any thyroid problems including Hasimoto's. I see her next month so I will be asking.
I have often considered going to an endocrinologist but the wait to see one is long here and I haven't been able to find anyone who recommends one. I am currently seeing an Integrative/Functional Medicine Doctor and recently underwent a 21 day total elimination diet followed by reintroducing foods. I do seem to have gluten sensitivity as well as dairy. I am still working on introducing things, so far shellfish and beef do not seem to be a problem. It has been about 65 days, I have lost 12 lbs. depending on the day. :D I am eating much healthier, no sugar substitutes, healthy organic produce and meats, no carbonated drinks, no coffee, no processed foods. I still have an occasional problem with sugar, but I admit I am an addict and all things considered, I am doing very well with that. I see him again next week and I will be going over the lab work with him and looking for answers.
Magnesium, oh my!! After my kidney transplant my magnesium was low so my nephrologist had me take 2,400 mg daily! Talk about becoming best friends with bathrooms all over the place. Even with that dosage it never went up and I tried for months to tell him everything was passing out of my system too quickly to be absorbed and on top of that I had damage to my GI system from scleroderma. It took over a year for me to convince him to let me stop taking it and see what happened. :emoticon-bang-head: I am now back in the normal range, although it is low normal. In general, my labs are good for someone with a transplant.
I have also been reading about adrenal gland failure and plan to ask my doctor about that. He is new to me but if he is a true Functional/Integrative Medicine doctor he should be able to help. I was also diagnosed with parathyroid gland issues when on dialysis and was told that I might have to have surgery but that has never happened and it is tested a couple of times a year and my doctor says it is fine. Dialysis really screws up your body while it is keeping you alive.
Tonight I have to organize pages of papers to fax to the transplant center, put my weekly meds in the boxes, tomorrow I go for blood work, pulmonary rehab, and a chiropractic appointment, the next day I go into the lung transplant center for a 6 Minute Walk Test and an appointment with a pulmonary hypertension specialist, who I looked up and is the top doctor there. I will continue to question the thyroid tests at the center and hopefully will get answers there. Pretty soon I get to have a 24 hour PH test on my esophagus and a gastric emptying series. :woohoo: Oh, then an endoscopy and colonoscopy. :happy-dance:
So Shelley, I would join you on that trip to Mars as I am sure they would have oxygen there, the only problem is there is not very much, if any, water on Mars and this girl needs to be around the water! Now you know why I go to the beach so much, no paperwork, no doctors, no phone (unless I am really expecting important medical calls.)