Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Flashing lights


  • Please log in to reply
12 replies to this topic

#1 atkinsc

atkinsc

    Newbie

  • Members
  • Pip
  • 7 posts
  • Location:Fareham

Posted 09 August 2013 - 07:42 AM

Has anyone else experienced sudden onsets of flashing lights affecting your vision? Also, feeling muzzy/spaced out- the first few times I didn't have a headache, but recently I have had one, but not as bad as what a migraine might feel like- but then I have never had a migraine so how would I know? Could this be Sjogrens??



#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 09 August 2013 - 09:35 AM

Hi Atkinsc,

 

I'm sorry you are experiencing flashing lights.  As I understand it, and please keep in mind I have no medical training at all, the general rule of thumb is to see an eye doctor immediately if the flashing is in just one eye or if you've recently suffered a head injury.

 

If its in both eyes, and you haven't recently had a head injury, then you can see your primary care doctor about it at your leisure, as it is probably due to a migraine.  See Migraine Symptoms by Mayo Clinic.

 

Please let us know what you find out, okay?

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 641 posts
  • Location:Auckland, New Zealand

Posted 09 August 2013 - 02:28 PM

Hi,

 

I am a long time sufferer of Migraine in almost all of its forms.   Flashing lights, double vision, ink blots, vertigo - you name it I have experienced it :sickly:

Vomiting, diahorrea, excruciating pain, mild pain what else can you think of to disturb your day!!!

 

I, like Shelley am still waiting for my $5 medical certificate to arrive in the post, but from experience I would suggest you talk to your Doctor about Migraine.

 

My first experience was almost 50 years ago and at that time I could banish it with 2 Aspirin and a lie down.   Since then over the years I have been on all sorts of medications some of which worked and some which didn't.   These days the meds I take to help with Raynauds and Hypertension lessen the Migraine  so it is worthwhile having that discussion.   As well, there are excellent medications available to deal with the headache which don't have the side effects that once were part of the recovery process.   It takes a while to sort out what suits you as an individual but hopefully you won't have too much trouble getting settled.

 

You say "could this be Sjogren's" and although I also have Sjogren's I would say it is the vascular component of Sclero which is the culprit where Migraine is concerned.

 

Good luck and best wishes

Judyt



#4 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 09 August 2013 - 09:55 PM

Hi Atkinsc,

 

Sorry to hear that you've been experiencing flashing lights and a general muzziness.

 

Thankfully, I don't suffer with migraine headaches, although my husband does get them occasionally (probably the stress of being married to me! ;) :lol:) I agree with Shelley and Judy and would suggest that you consult your general practitioner about it. I do have a couple of floaters in one eye, which come and go periodically and I did get them checked out by an eye specialist, via my doctor, just to confirm that there was no serious problem.

 

Do let us know how you get on.

 

Kind regards,


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#5 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 09 August 2013 - 10:33 PM

Hello Atkinsc

 

My money's on migraines but you need the official medical stamp of a doctor/optician to be sure. I understand the want to blame all ailments that arise on our autoimmune disease, whether Sjogren's or scleroderma, but we can't always!

 

Please let us know what the doctor says and take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#6 amberjolie

amberjolie

    Silver Member

  • Members
  • PipPipPipPip
  • 197 posts
  • Location:Ontario, Canada

Posted 10 August 2013 - 12:08 PM

I get migraine auras, which I would describe as dancing/flashing waves in my eyesight.  I never get the headache afterwards, which I am very thankful for.

 

I saw a neurologist, and after an MRI to confirm nothing else was going on, he said it was likely migraine auras.

 

So to be safe, you should probably consult with the doctors, but that may be all it is.

 

One way to tell if it's in your eye or a brain-related thing - close each eye - if you see the same thing in each eye, it's likely related to the brain.  If it's only in one eye so when you close it you don't see it with the other eye, then it's likely eye-related.



#7 atkinsc

atkinsc

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 7 posts
  • Location:Fareham

Posted 11 August 2013 - 10:18 AM

Thanks to all for speedy replies/advice. I do have an appointment with my GP soon. I will let you know how I get on.

 

ta Clare-x-



#8 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,002 posts
  • Location:Pennsylvania

Posted 11 August 2013 - 01:51 PM

Hi Clare....I also get the Optical migraines, with no pain.....knock on wood.  First one took me by surprise and scared me....it was totally psychedelic.  There's been flashing black/yellow ones like bumblebees and lightning ones with jagged lines.  Eye doc agreed with primary care physician about them being migraines.  Make sure you get them checked out/documented just to be sure.

 

Take care, Everyone.

Margaret



#9 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 13 August 2013 - 02:32 PM

Hi Clare,

 

Please let us know when you get back from the doctor, and what they had to say.  We can only speculate...only your doctor knows for sure, and we want you to have this properly diagnosed and treated, and to feel better soon!

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#10 atkinsc

atkinsc

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 7 posts
  • Location:Fareham

Posted 23 August 2013 - 07:55 AM

Hi all,

 

Yes, general practitioner says its migraines!! Yet another condition to put up with!!

 

Agree, it's too easy to blame everything on scleroderma- but with having so many symptoms I just assumed.

 

Clare



#11 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 23 August 2013 - 11:39 AM

Hi Clare,

 

Glad to hear you've got a diagnosis, at any rate! :)

 

Hope that the migraines improve and you feel better soon.

 

:emoticons-group-hug:

 

Kind regards,


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#12 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 26 August 2013 - 08:22 PM

Hi Clare,

 

Congratulations on having migraines!  Oh now that didn't come out right, did it?  Er, I mean, congrats on getting them properly diagnosed.

 

I've had them for decades but they went undiagnosed for ages and ages, because I was under the impression that migraines always made people vomit. So I was very surprised when I was diagnosed with migraines.  I guess sometimes the patient is the last to know, or even suspect, what is going on, eh?

 

It's very helpful to be diagnosed. Now you can start working on trying to avoid attacks and trying to treat them promptly when they occur anyway.

 

Of course, the vast majority of people with migraines do not have scleroderma or any other underlying disease.  But it's possible scleroderma might make us more susceptible to migraines because scleroderma can affect every part of the body, including neurological and vascular.  Also see: Scleroderma Brain Involvement.

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#13 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 28 August 2013 - 02:05 AM

Hello Clare

 

Oh, dear. I had migraines and headaches from about 20 years of age (am now 45) some of which made me want to blow my head off they were so bad but I had no idea how bad they could actually be. They disappeared as did the headaches a few years before I had scleroderma and then they came back, BANG!, for the first 2 years that I had scleroderma and let me tell you I had no idea how bad they could be until then. I had never vomited before and now I did and the pain was like nothing on earth so much so that if I had the choice of ditching scleroderma or the migraines it would have been the migraines. You can't tell me there's no connection between scleroderma and migraines! I am pleased to tell you that since starting amlodipine they have gone, I don't even get headaches anymore!

 

Please don't put up with them there are lots of medications you can try, my experience of doctors was not good, it seems that when it comes to migraines they have little interest and I think that's because although the pain makes you think you're dying you aren't so they're not interested!

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)