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Newly diagnosed Morphea and a start on Methotrexate


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#1 camero87

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Posted 11 August 2013 - 08:38 AM

I was diagnosed with morphea after a biopsy and blood tests when I had discovered an indentation on my calf, a lump on my other lower shin, a spot on one forearm and discoloration now on my forehead. Needless to say, I'm a little nervous. I had chest xrays and started methotrexate, prednisone and steroid creams. Is this normal for the doctors being proactive for this disease? I'm trying not to google this too much...but kind of hard not look up stuff. After all, it's how I found you guys. I'm a 44 year old female who feels like she got hit by a bus yesterday because of that medicine, but today I feel better. And this is a good thing.



#2 Joelf

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Posted 11 August 2013 - 12:32 PM

Hi Camero87,

 

Welcome to these forums!

 

I'm sorry to hear that you've been diagnosed with Morphea and we have one of Amanda's super videos about this type of localised Scleroderma on the link I've given you. I'm very pleased that you're feeling better since starting your medication and certainly Methotrexate and Glucocorticoids are a recognised treatment for Morphea; however, UVA1 phototherapy is now the recommended first-line treatment for it.

 

We do recommend that, if possible, our members consult a Scleroderma specialist in order to receive the best and most up to date treatments.

 

It's great that you've found our forums, I do hope you'll enjoy being a member of our community and I've included a link to another thread on Morphea, to give you some more information and help.

 

Kind regards,


Jo Frowde
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#3 camero87

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Posted 11 August 2013 - 05:38 PM

Thank you for the information on uva and phototherapy. This will be brought up at my next appointment. I will keep surfing around your site and reading your news. Your site has been a great help. Thank you!



#4 Shelley Ensz

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Posted 12 August 2013 - 10:32 AM

Hi Camero,

 

Welcome to Sclero Forums!  Jo has given you some great links and info to check out. I am glad you found us and hope that you continue to improve.

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#5 camero87

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Posted 12 August 2013 - 06:48 PM

Thank you. You have a great site. I'm learning lots.



#6 Amanda Thorpe

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Posted 19 August 2013 - 02:32 PM

Hello Camero

 

I have morphea and bullous morphea (blistering form of the disease) as well as systemic scleroderma, greedy eh? Apart from moisturising the plaques I do nothing for my morphea and I have over 20 plaques on my thighs, it's the bullous morphea, and of course the systemic scleroderma, that give me problems. Unfortunately when the blisters burst they ulcerate and lead to cellulitis!

 

I hope your treatment works and the side effects reduce, please keep posting and let us know.

 

Take care.


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#7 camero87

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Posted 19 August 2013 - 03:56 PM

Sorry to hear...and you're not greedy. I've also got epilepsy..I just thought I would try out a new disease for a while. ;)

 

Since I've last posted, I've had about 6 more areas show up. Is this what is called an Active Phase or something?? And, the areas that hurt, are only two. Thank goodness.

 

Get well soon..and would someone please let me know about this rapidness of  spread...is that "normal"?



#8 Joelf

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Posted 20 August 2013 - 04:55 AM

Hi Camero87,

 

Please note I have no actual medical training, but I think that the rapidity of the spreading Morphea patches does vary from person to person. To quote from our medical page on Morphea "It typically begins fading within about 3-5 years after onset, even without any treatment at all. Deeper, fast-spreading, cosmetically apparent, or different forms of morphea require early diagnosis and, preferably, treatment by a scleroderma expert".

 

Kind regards,


Jo Frowde
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International Scleroderma Network (ISN)


#9 Amanda Thorpe

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Posted 24 August 2013 - 05:48 AM

Hello Camero87

 

My morphea spreads quickly when it's on the move. Mine is the simple plaque type but still spreads quickly, I have larger plaques than when I last posted on this thread.

 

I am already under the care of a scleroderma expert because of the systemic sclerosis, maybe you should get an expert to cast an eye over your morphea on account of how fast its moving?

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
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International Scleroderma Network (ISN)