I was recently diagnosed with PH via right heart catherization where part was done during exercise (I had to lift saline bags over my head.) Based on a wedge pressure of 30 under exercise I was started on medication and a diuretic. The diuretic set all my labs off for my kidney transplant anti-rejection medications so I had to cut back on it.
I am currently undergoing testing for a lung transplant and saw a PH specialist. A right heart catherization will be repeated but this time it will be done with a chemical to induce stress. I also am having multiple tests done on my lungs, heart (including a left heart catherization,) and my GI system.
With your pressures under Echo higher than normal, has your doctor ever suggested a heart catherization? Are you short of breath at all? If so, is it when you are sitting still, moving around, or laying down at night?
Judyt, it is interesting to me that what was thought to be PH ended up being something else. I asked the PH specialist if she would be my PH doctor and she said, "that depends on if you have PH or not." She also said she had an idea of where the transplant doctor was heading with all of the testing. Before I read your post I had the thought that perhaps it might be something else.