I'm new to the forum and have been reading a lot of the information. A support group is always helpful. I've never been that concerned with the CREST syndrome I've had for about 15 years now. Raynauds being the most worrisome of the C.R.E.S.T. conditions.
In April I was diagnosed with Endometrial cancer. I had a complete hysterectomy in July. It was in Stage 1a, but the tumor was a Grade 3. I was told the margins were good, meaning the tumor was contained inside the uterus and the parts that were cut away were a good distance from the tumor (layman's terms!) Because of the tumor being a Grade 3 though it has been recommended that I have 3 internal localized radiation treatments in the vagina. I am very concerned about these treatments which will be high dose radiation lasting about 15 minutes each, once a week for 3 weeks.
My main concern is due to the scleroderma risk. Not only am I concerned about possible scarring developing in the vagina, but also I've been reading that radiation can actually CAUSE scleroderma, which makes me wonder if it can make the condition worse for someone who already has it.
I've done extensive reading online trying to weigh the pros and cons. I have not come up with a decision yet, but need to do so within a week. Does anyone have some knowledge about this they could share with me? I would appreciate it very much!