I have not been diagnosed yet, I am new here, this is my first post. I am female and 40 years old. I haven't felt well for several years. Extreme fatigue has been a constant. After 3 miscarriages in a row I finally had a healthy boy 2 years ago.
Then last summer I started getting sore hip joints. A constant achy feeling. Dry red eyes and throat soon followed. My husband thought it was pink eye. After a few months of the dry eyes I saw an opthalmologist. He gave me eye drops. Went to primary care physician, told these symptoms were nothing.
In April of this year I noticed my pointer finger joint closest to my fingernail was very sore. Thought maybe I hurt it somehow. I was also having difficulty picking up small things like popcorn. Then one day I noticed a red flat rash at the nape of my neck so off I went to the dermatologist.
She told me my rash was a birthmark. I told her it is not a birthmark. I mentioned the sore finger joint and I asked if she could run some blood work. I was thinking maybe this was Lupus. She didn't want to run tests but I insisted.
My ANA came back 1:160 positive nucleolar. My ENA including SCL-70 was negative. My RA factor came back at 14 which is indeterminate. CCP negative. CRP negative. My neutrophils and my WBC are way below normal though.
I called my doctor for those results and she said everything was normal. But I didn't feel normal.
In June both PIP pinky finger joints became red and swollen. I also started getting all over body tingling.
By July food started getting stuck in my throat. My shoulder blade/upper arms have gotten really weak too and I can barely keep my arms up for long. I am also noticing my toes feel different. Sore when I stand up. My hands and feet and nose have been cold for several years although I do not notice color changes.
Over the past 2 weeks I notice my face feels tighter and my skin has become dry. I have never had dry skin before. I also notice that over the joints on my toes the skin has become hard and dry looking.
Back to my primary care physician I went last week. I told her of the new progression of symptoms. She said that lots of people have a positive ANA and are healthy. I flat out asked her what she thought this could be and she barked at me and said that she had no idea because I have too much going on with me! I told her that a positive ANA would not concern me too much except that I AM having symptoms.
It was at that point that I asked for a referral to a rheumatologist. I am also going to be looking around for a new family doctor. I just wanted to come on here and introduce myself. I am from Vancouver BC Canada.
I am terrified of a diagnosis but I know that whatever is happening is happening fast. If anyone has any advice on what I should be doing or asking at the rheumatologist I would really appreciate it.