Hi everyone, just a little update in case anyone is in a similar position and wondered what happens next! :)
I finally saw the Scleroderma specialist, Dr. Anderson, last week and she was so lovely and really helpful. I had spent the last three months (whilst waiting for my appointment) finding out everything I could about this disease so I could be as informed as possible and I must have done a good job as I didn't really find out anything new, but she was very reassuring and told me that that I am in the early stages of Sytemic Scleroderma (didn't say which type - not sure if it's too early to tell yet although I have SCL-70 and the Raynauds only started quite recently so I suppose that points more to diffuse?) and that I don't need any medication at the moment, but I will be very closely monitored and have another appointment with Dr. Anderson in three months time.
She gave me numbers to ring if I had any questions and sent me for another whole load of blood tests (ten tubes!! Ten!?) and an EKG (think that's what it's called - apologies if that's wrong - the heart trace thingy where they stick little stickers on your body and check your heart rate?) and she's also made an appointment for me to have the nail fold capillary test in a couple of weeks.
I had to see a different doctor for the results of my previous scans and tests (chest ct, chest x-ray and heart echo) and I was a bit anxious about the results of these, as over the last couple of months I've been having a bit of pain in the chest area when I breath in deeply, especially in the morning when I wake up, and also find I've been getting a bit more out of breath when I'm walking than I have in the past. But apparently all of the tests have come back clear so I'm a bit puzzled about that. The doctor said the chest pain could be due to stress, so hopefully it'll disappear now! :)
Anyway, that's where I'm up to in my little Scleroderma journey - just trying to get my head around what's coming next, but at least I know that when something does come up, it'll be caught early and I can get on with getting it sorted!
Thanks for listening and hope you are all having a good day,