Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Some one or some organisation in Mexico that treats Scleroderma?

  • Please log in to reply
3 replies to this topic

#1 santanamuff



  • Members
  • Pip
  • 1 posts

Posted 04 October 2013 - 01:34 PM

I have my sister 34 years old with Sclero; she was diagnosed  3 years ago. It is very frustrating to see how she gets worse every day; she goes to a lot of doctors but no one can raise her up, not even a little. Right now she is in the hospital in urgency room; I just want some one to help us! Please! We give our support to her as family and buy the medicines with a lot of suffering and we don´t see any positive results. Please be thinking of my sister and I hope you guys know about some one that can help us in Guadalajara Mexico.


Good thoughts to you.

#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,561 posts
  • Location:West Sussex

Posted 05 October 2013 - 05:54 AM

Hi Santanamuff,


Welcome to these forums!


I'm sorry to hear that your sister has been diagnosed with Scleroderma and that she's suffering so badly from it.


I've included a link to our page on  Scleroderma specialists and also the Scleroderma Clinical Trials Consortium (SCTC) list which covers Mexico. We do advise our members to consult both lists.


I do hope that you will be able to get her the specialist help she needs.


Kind regards,

Jo Frowde
ISN Assistant Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,263 posts
  • Location:Minnesota

Posted 05 October 2013 - 07:08 PM

Hi Santana,


Welcome to Sclero Forums.  I hope you were able to find a scleroderma specialist from the links that Jo gave you. As it happens, scleroderma is a difficult illness to treat, in every country. An awful lot depends on what type of symptoms your sister is dealing with.  You can look up her symptoms on our main site, and see what the treatment options might be for them, too.


I am sending warm hugs for you and your family, in hopes that your sister feels a bit better, soon.



Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,921 posts
  • Location:U.K.

Posted 07 October 2013 - 09:19 AM

Hello Santanamuff


Welcome to the forums, I am so sorry about your sister. Apart from wanting to say your sister is all the better for having you to support her I hope she turns a corner I can't add anymore to what has already been said.


Take care.

Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)