I have been diagnosed after a biopsy with Linear Morphea. It started in my upper right thigh around ten years ago when I was about 35. I had light therapy and dovonex (calcipotriol hydrate) creams and was subsequently told that I was lucky as I was cured.
The illness has recently returned below my knee at the front and side of my leg and oddly has been significantly more painful, I.e. burning and aching? I also have a slight indent on my calf muscle which I have been told will be a permanent scar. The morphea above my knee did not affect me at all so I was unconcerned about it.
The pain has stopped in the main and I have been to see Dr Sheehan at Chapel Allerton Leeds who has recommended dovonex ointment and light therapy treatment.
I do also have a faint patch on my hip which is barely noticeable and again has never bothered me at all. I am very worried about this new bout, below my knee and having read lots of stories on the internet and am trying to put it into context as I am not sure if I am worrying too much seeing as there is nearly a ten year gap between the disease burning out and then restarting. Does anyone have any similar experiences? The scarring etc doesn't really bother too much its more not really understanding how serious this is and what the long term prognosis is. Having read other peoples experiences there does seem to be some improvement with dovonex ointment and light therapy.