Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

help


  • Please log in to reply
12 replies to this topic

#1 chockers

chockers

    Silver Member

  • Members
  • PipPipPipPip
  • 133 posts

Posted 20 October 2013 - 12:19 PM

Hello, 

 

My finger has Calcinosis I think, it  is swollen, bright red and infected.  It has an ulcer under the lumps with blood.

 

Very  painful  and my body temp is 35 .6.

 

Have been given antibotics and painkillers and  go to see my general practitioner in few days.

 

Where do we go from here, how long does this go on?

 

Christine



#2 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 20 October 2013 - 03:50 PM

Hello Christine

 

I am sorry you have calcinosis, based on what others have said it can be very painful! If it is calcinosis it should produce a white chalky substance if it breaks through the skin. Have a look at the link, does your finger look like the photo?

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#3 chockers

chockers

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 21 October 2013 - 03:58 AM

I have the ulcer behind the calcinosis; the doctor said it's blood filled as someone banged it hugging me with a bag on their arm, although I had padded it up. So, so painful!  Wondering how long the infection and swelling will last and hopefully the thing will leak.

 

Christine



#4 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 21 October 2013 - 04:35 AM

Hi Christine,

 

Ouch.....that does sound very painful and unpleasant; poor you! :sorry:

 

It's a good thing you're seeing your doctor in a few days, to enable him to keep an eye on it, although I know from Amanda's experiences with ulcers that the healing process is slow with autoimmune problems.  Hopefully the antibiotics will prevent any further infection spreading and obviously you'll be keeping it very clean.

 

Kind regards,


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#5 chockers

chockers

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 21 October 2013 - 07:29 AM

I'm hoping it will leak some white stuff to stop it hurting so much. See the doctor on Thursday;  funny, he was one of the out of hours doctors and saw me and said he had dealt with some before and to make sure I see him.

 

Out of hours were good but not in Wales; I could not get to see anyone; lack of funding, I think.



#6 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 21 October 2013 - 11:36 AM

Infection makes it more painful so once that's gone hopefully you will notice a difference. Why it does I have no idea I just know from experience with my own ulcers.

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#7 chockers

chockers

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 23 October 2013 - 01:42 PM

Doctor says no ulcer? I am watching the liquid fast track down the finger and the pain has gone because it has burst.

 

Going to the doctor's tomorrow and  hopefully he will let me tell him what needs doing. Since 18:00 hours it has got huge and I have doubled the antibiotics.

 

So hopefully someone might do something, they tell me the GP will deal with it not the hospital but I think I really should go to the Rheumatologist?

 

My rheumatoid arthritis nurse says the GP will sort it out, I have scleroderma  overlap.  

 

I have also  been back to the GP and was told there is an ulcer was behind the lump but its an ulcer waiting to happen.

 

Christine Wilson



#8 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 23 October 2013 - 10:08 PM

Hi Christine,

 

It must be very frustrating to feel as if you're being pushed from pillar to post between the nurse and general practitioner.

 

I would recommend that you try and get an appointment with your rheumatologist; not always easy, I realise, but as your ulcer is getting worse, you'll probably have to insist! ;)

 

Kind regards,


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#9 chockers

chockers

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 24 October 2013 - 05:20 AM

No ulcer as yet, thank goodness as the calcinosis was big and full of pus. Today I have been to hospital and had it drained using gas and air sedation/pain relief.

 

I see the nurse tomorrow then at the GP's then the doctor's. Now I am on the right antibiotics and right dose so hopefully it will sort itself out. 



#10 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 24 October 2013 - 06:35 AM

Hello Christine

 

Often when people have an area of calcinosis on their finger it can ulcerate after it bursts. I guess it's a lack of healing, the hole left by the calcinosis does not heal as it would on a healthy person (who would not have calcinosis I know!) but ulcerates instead.

 

Bear in mind that calcinosis can reappear in the same spot so don't be surprised if the finger fills up again. Unfortunately it can be an on going problem, like ulcers, never really going away completely but just laying low for a while and then suddenly...! There's no real treatment for it either it's a case of managing it as best as you can.

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#11 chockers

chockers

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 28 October 2013 - 09:19 AM

On the right track now. Been to GP and nurse. He had a good look; the finger is in a mess, dead skin and a funny looking tip.

 

It's been re-dressed. On Wednesday I go to have it dressed again and when it's all open the doctor will come and look. He thinks it will end with taking the calcinosis out. So far no ulcer. I'm getting a hospital appointment when it's healed maybe Dec/Jan.  A little bit of talk about iloprost the transfusion drug.

 

The skin is brown with no pus now and it seemed dry. But the mess is down the finger where the pus was too. The skin should die and new skin should grow, but the tip of the finger where the calcinosis is looks messy with dead skin and the mess fills the tip .

 

I think they put something on to prevent my getting an ulcer.  

 

Christine 



#12 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 28 October 2013 - 12:10 PM

Hi Christine,

 

I'm really pleased to hear that you've been back to the doctor and had such a satisfactory outcome. Hopefully, the treatment you've received will prevent the area becoming ulcerated, the inflammation will clear up and it will be less painful and unsightly for you.

 

I've included a link to our medical page on Iloprost to give you some more information.

 

Kind regards,


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#13 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 30 October 2013 - 12:55 PM

Hello Christine

 

Did you know that the definition of an ulcer is an open sore resulting from a break in the skin which does not heal after 6 week?. If the hole in your finger is still open after 6 weeks it's an ulcer!

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)