So, I was admitted to the ER towards the end of Aug. I had an appointment with my primary care physician, but had been in so much pain since 4:30 that morning I couldn't be still for an exam. It was like IBS and had been having strange bowel habits and terrible cramping since April on and off. Anyway, at the ER they did a CT scan via IV infusion and found nothing. Nothing in the stool specimen either. Saw my GI doctor 3 days later and she is assuming it is the scleroderma esophagus getting worse and moving into the intestines. She put me on 550 mg of Xifaxin, 2 x per day and then says just to do it every 5-6 weeks forever. Well, insurance turned it down as it is around $1000/14 pills. I don't want to take it and don't see any difference when I do, other than explosive diarrhea. It just seems like they're shooting in the dark. It is FDA approved it in this country for Hepatic encephalopathy, but not for treating me...she mentioned E Coli in the intestines or some flora building up due to lack of peristalsis or a slowing of peristalsis. I was diagnosed over 10 years ago, so they're just assuming the scleroderma is getting worse. Oh, I was diagnosed with cREsT then, so I guess now it's considered limited, systemic diffuse? My hands are not affected, for which I am grateful, but I do have gastral antral vascular ectasia (GAVE) Got nasty when they said I had watermellon stomach! Anyway, has anyone ever been treated with this stuff?
Second question...I don't heal from surgery as well as others; sometimes yes, other times, no. Is it safe to have a dental implant? I have been putting it off for 2 years!
Thanks all or anyone!