Just wanted to thank all of you for the support over the past months and to give a brief update. I have seen the new rheumatologist and he has agreed to take me on as a patient. He does feel there is something autoimmune going on with me, however all recent testing came up negative, including the anticentromere. I do have positive ANA still, and he has spoken to me about starting plaquenil. I am now in limbo waiting on a capsule endoscopy, which my gastro wants to run due to a question of crohn's disease (recent colonoscopy/upper endoscopy showed inflammation in ileum and duodenum). I also am waiting to hear back from my endocrinologist.
According to my online chart I have elevated alpha subunit levels, which possibly may indicate that I have a pituitary adenoma/tumor. As yet I haven't heard what steps we will take to deal with that, but interestingly one of the symptoms of a pituitary tumor/adenoma is joint pains.
I am curious whether any of you had scleroderma related antibodies show up, then disappear? I am wondering if that happens, wondering whether they may return or if that past test may have been a false positive.
Thank you again for all of your advice. I am sure I will continue to lurk here as the months go on and a diagnosis becomes clearer.