I'm new here. My GP thinks I may have CREST and I've been referred to a rheumatologist.
For the past two years, I've been having pain in my hand joints and my fingers are becoming twisted. Small nodules are forming on some of my finger joints. My right wrist has been painful from time to time (since my early twenties!) and now my left wrist hurts too. At night or in the morning, my fingers feel swollen though they don't look as swollen as they feel. Sometimes the skin feels itchy.
Surprisingly, my hand x-ray came back 'normal' - I don't understand how that can be, neither does my GP and that is why he has referred me. My blood tests also came back 'normal' - perhaps I'm someone who tests negative for CREST but still has it. (Test showed it's not RA either).
Other symptoms are difficulty swallowing, hair loss, very cold hands and feet.
I'm just wondering what to expect from my appointment with the rheumatologist on Monday. I'm worried about my fingers becoming more deformed - just doing simple household tasks can make them hurt, eg. if they are forced to bend too much in one direction. Is there medication I can take to prevent further deformity? At what point are you given meds?
Thank you for taking the time to read this. Could anyone with similar symptoms perhaps share their story?