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Biomarker for Diffuse Scleroderma skin has been discovered!


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Hands And Fingers


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#1 ErinF

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Posted 27 March 2007 - 01:59 AM

Hi everyone! I've noticed lately when I wake up that my fingers on my right hand (my dominant hand) feel very swollen, but they're not at all. Also, when I try to bend the last two fingers on this hand, I feel some "resistance." They do bend, but even my husband noticed how they're was like "jump" in the base knuckle in order to get them to go. Could this be the sclero? I thought I would see it in both hands and that the hands would actually be swollen instead of just feeling like it. Is this how it starts, when it's just sort of lurking there? And one more thing--I had to rinse my hands off this morning after making some bread and I just quick rinsed with some cold water. When I looked down at my hands, on this hand that's bothering me it was very pale between the fingernail and second knuckle on 3 of the fingers. I've never had color changes in my hands and I guess I would think that you would see the color change in the fingertips before any other part of the finger--but my fingertips looked just fine.

Is this a really weird way for the sclero to present itself?

Thanks,
ErinF

#2 ErinF

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Posted 27 March 2007 - 02:49 AM

I should add that this hand feels fine now, except for my middle finger, which is kind of achy. Both my hands were really achy the other day but it only lasted one day.

thanks,
ErinF

#3 nan

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Posted 27 March 2007 - 02:50 AM

Erin,
My hands and feet feel swollen all of the time, but don't look it. Also, recently when I wake up I have trouble with just my left hand, two fingers just like you that are difficult to bend. I have severe Raynaud's. It can happen anywhere on the fingers or toes. I tend to think the feeling of swollen hands and feet is related to scleroderma. I would definitely let your doctor know. Sorry I didn't really answer your questions. Take Care!
Nan

#4 Heidi

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Posted 27 March 2007 - 03:38 AM

Hi Erin,

That sounds exactly like my hands. In the mornings they feel very swollen (they don't look too bad, but I know they are swollen as I can't get my rings off) and I have a hard time making a fist (it is really hard to pick up my pills in the morning because of it). Also, lots of times when my fingers turn white from the Raynaud's the tips will still be pink or red but the middle part will be white. Go figure.....

Warm wishes,
Heidi

#5 Sweet

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Posted 27 March 2007 - 04:53 AM

Hi Erin,

Sorry you are having problems with your hands. Unfortunately - yes it sounds sclero related. It sounds like you have a two fold problem, 1) tightening 2) raynauds.

I have the same thing. I think some of my tightness is due to arthritis in my joints. Sometimes it hard to use my hands. I try to do exercises with them, stretching, spreading the fingers as far apart as possible, working the joints. Sometimes its easier to do this in warm water.

As far as the Raynauds, you need to keep those fingers warm! Simple things like running your hands under cold water can be dangerous, or getting food out of the feezer etc. I know a lot of people use oven mits to take anything out of the freezer.

It's all managable and there are a lot of great ideas out there that I'm sure many can chime in and give you.

Most of all, call your doctor and inform him of these changes.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Patty1

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Posted 28 March 2007 - 01:33 AM

Hi Erin,
I find it an everyday occurance. When I think back, that was one of my first symptoms that I recognized as something was not quite right. My hands feel, and are swollen in the morning..sometimes it lasts for a few hours. Last year I had to have my wedding rings and mothers ring resized up two sizes due to the swelling in my hands. They had to cut my wedding ring off last winter when I was in the hospital for Prostacyclin infusions( for Raynauds). I feel the tightness too. Sometimes it feels like my skin is going to literally rip.
Your reaction to the cold water sounds like Raynauds to me, too,but like Pam said, make sure you let your doctor know of the new symptoms. I have found that my tolerance and reactions to cold temps has gotten worse, now I cannot reach into the freezer without gloves on, as it hurts way too much bare handed.
Stay warm,
Patty

#7 debonair susie

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Posted 29 March 2007 - 01:14 PM

Hi Erin, I was more afflicted on the right side than the left prior to diagnoses
of Scleroderma and Raynauds... now it's affected both left and right hands. I was diagnosed in 1995 and over the past year, I began taking off my ring(s) prior to going to bed. Otherwise, my rings would be too tight for comfort! As the day wears on, I can put them back on.
Hugs, Susie
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Susie Kraft
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