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Biomarker for Diffuse Scleroderma skin has been discovered!


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Facial Injectibles


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#1 Tazzie

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Posted 16 January 2014 - 03:19 AM

Has anyone had facial fillers or injections for their Scleroderma mouth ?



#2 Joelf

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Posted 16 January 2014 - 12:52 PM

Hi Tazzie,

 

Welcome to these forums!

 

Thankfully, I don't suffer with microstomia, so can't advise you from my own experience. According to our medical page on Collagen injections, Face Lifts and Scleroderma "Patients with certain connective tissue diseases may have an increased risk of severe allergic reactions to collagen injections. Thus, collagen injections should be used with caution.  Some experts recommend that people who have had these diseases should either not be given collagen injections at all or should be given multiple skin tests before treatment." 

 

We also have a link to Scleroderma lips which I hope you'll find interesting and informative.

 

Kind regards,


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#3 miocean

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Posted 16 January 2014 - 08:47 PM

My dermatologist suggested filling the lines around my mouth. He explained that since they were deep it would be like filing a hole, a little at a time. Since my immune system is weakened by anti-rejection drugs for a kidney transplant, I determined the risk of infection from the injections outweighed the way the lines look.

 

I view them as my battle scars and I am more aware of them than others. And when I smile, they don't show as much so I smile all the time!

 

Here is a link to my initial forum post. 

 

miocean


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#4 Amanda Thorpe

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Posted 17 January 2014 - 02:02 AM

Hello Tazzie

 

Scleroderma is a disease of excess collagen, why would you want to inject more of it in to your face?

 

At the Royal Free London UK, a centre of excellence for scleroderma, they do a procedure to fill in the mouth and lips in which they take fat from the abdomen, check it for scleroderma and then inject it into the lips/mouth to plump it up again. I know of a lady who had this procedure done and now looks what you would call normal and prior to the procedure her mouth was so bad that people would whisper behind her back.

 

Are they doing that type of procedure anywhere near you as it would be a safer for you than having collagen injections!

 

I hope this helps and take care.


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#5 debonair susie

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Posted 24 January 2014 - 08:57 AM

Hi Tazzie!

 

Interesting thread and thank you for posting it!

 

miocean, good call on your part... Considering all you deal with, that would be a concern I would have too.

 

Jo, those are GREAT links to have posted!

 

Amanda, that is VERY interesting, but sure sound like a labour-intensive procedure, not only for the doc, but also for the recipient! However, I'm sure that the lady is THRILLED with the results and it was (no doubt) worth the venture! That is so wonderful for her.

 

I, too, have microstomia and it really DOES present with issues that some are able to adapt to, yet others...not.

 

Tazzie, I hope the information that was posted here helps you with your ultimate decision.... My best to you.


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#6 Sweet

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Posted 25 January 2014 - 10:25 AM

Yes I have. I've been doing it for about 7 years now. LOVE it and has worked wonders for me. :)


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#7 debonair susie

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Posted 25 January 2014 - 02:48 PM

How very GREAT it works so well for you, SWEET!! :yes:


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