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About "The Nurse and the Cannula"


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#1 Kathy D

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Posted 28 May 2014 - 08:04 PM

Amanda,

 

I had the opportunity to read your past blogs and this one gave me a belly laugh!

 

I am sorry for all the pain and frustration you suffered, there are slow nurses in the US too..........and I am so pleased you did not lose your hand!

 

 

My first echocardiogram the male tech gave me a hand size towel to cover my breasts.  I was so embarrassed when I had to turn over for him and became exposed (blushing, I actually apologized to him).  In the next few years the same tech did another echo on me except this time my husband was with me.  How convenient that he gave me a much larger towel to cover my breasts in the presence of dear husband.  I now belly laugh that I actually fell for his simple trick :)

 

KD


Diffuse Scleroderma Diagnosed March 2009

#2 Shelley Ensz

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Posted 29 May 2014 - 09:16 AM

Many Sclero Forums members may not be aware of our fabulous Sclero Forums Bloggers, since they are in a separate area of the forums.  Our bloggers range the gamut from serious to hilarious, and back again, exposing every side of scleroderma both as patients and caregivers.

 

Kathy had stumbled upon Amanda Thorpe's blog about The Nurse and the Cannula, which includes a hilarious -- as long as you weren't the victim in the matter as Amanda was at the time -- rendition of the Cannula Cowboy.

 

In essence, it is another fabulous example of how to effectively use humor to deflect the simply unavoidable barbs and arrows -- and needles! -- of living with chronic illness. Whenever we find something simply unbearable, when we feel our attitude slipping into a black hole and threatening to never get out, we can try to turn the matter over in our mind until we can see the funny side of it. Mining the humor out of the gravity might make the load lighter for us to bear, encourage the production of endorphins and seratonin, and make our tiny corner of the world a better place, or at least, a bit more tolerable one.

 

Kudos to Amanda, and to everyone else in Sclero Forums who often put their imaginations into overtime to help lighten our spirits! :you-rock:

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Amanda Thorpe

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Posted 31 May 2014 - 02:44 AM

Kathy I can't believe that...wait a minute yes I can!:-);-):-D:-(:'(:O I have put all the emoticons in as I can't tell what they are on my phone. I'm going for the laughing/astounded/smirking ones.

Shelley thank you and I totally agree, as you say, at the time it may be horrendous, but when the dust settles...

Take care.
Amanda Thorpe
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#4 judyt

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Posted 31 May 2014 - 08:26 PM

Hi All,

This thread puts me in mind of an experience I had just 3 weeks ago.   Lately I have been suffering from very low Iron stores.   Haven't got deeply into looking for the why's and wherefore's but that is hopefully due to start sometime soon.   Like in the next 3 or 5 months!!   No rush people, I promise I won't die before they get to me.

 

Anyway, I am straying off the subject.   3 weeks ago I was due to have another Iron Infusion, for which I have been attending a Private Clinic.   This time we started on the usual Nurse check, BP, Medications, other disorders - Heart yes, Liver yes PBC at which point the interrogating nurse leapt up from her seat and said "OH I must tell Erica".

 

It turned out that one of the other staff at this centre also has been diagnosed with PBC (Primary Biliary Cirrhosis) and although she works in a Clinic has never met another PBCer.   She was beginning to think she was the only one in NZ until I came along.   Erica took over caring for me for the rest of the afternoon and as you can imagine it was a case of having to remind each other every few minutes about the real reason we were there, she got so excited that her hands shook and she muffed putting in the lure and had my blood everywhere!!   Decided to get somebody else to do it for her but nothing much worries me these days so we just carried on talking. 

 

As you can imagine, the afternoon passed so quickly that all of a sudden I was in recovery, making sure I didn't faint or anything absurd like that and we were still talking flat out.

 

Oh well, if we have to go through these procedures, we might as well enjoy it as much as we can.

 

Keep up the good work everybody and Hi to Jeannie from me too.

 

Judyt



#5 Shelley Ensz

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Posted 02 June 2014 - 09:06 AM

Hi Judy,

 

I am including a link for Scleroderma Liver and Spleen Involvement for those who don't know what primary biliary cirrhosis is. 

 

Having had this happen all too often myself, "She muffed putting in the lure," is now officially my favorite quote of the day.  Maybe the week.  Or even the year!  :thank-you: 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 judyt

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Posted 02 June 2014 - 07:25 PM

Hi All,

 

Thanks Shelley for that link.   It had crossed my mind that some people might wonder what PBC is and why I am so lucky to have it along with all the other things.   I read the information in the link, of course, and it was good to get a refresh about what is happening to me.   PBC is, fortunately, a slow moving beast and many people like me live with it for many years.   The usual opinion is that one is more likely to die WITH PBC than OF it and that is encouraging if nothing else.

 

I don't get the itch that some folks find so bothersome, but I do have the fatigue, and because I now have some cirrhosis I get the accompanying Portal Hypertension.   The Portal vein is the one which passes through the liver, and since cirrhosis is a hardening or stiffening of the organ then the blood has trouble getting through so pressure builds up elsewhere.   Stomach varices are common but I am starting to sprout them in my rectum which is causing more trouble there, and is something I would rather do without - but nobody asked me so I just have to put up with it.

 

My one bit of complaint about this part of my disorders is that for years I had deranged LFT's (liver function tests) and nobody attached much importance to them.   Maybe if I had been started on medication earlier I might not have cirrhosis now - but who knows??   If anybody out there is aware that their LFT's are deranged or even a bit high then maybe it is worth asking for more investigation.

 

Best wishes to all

Judyt