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Another Update

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#1 summer


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Posted 29 March 2007 - 12:21 AM

Hello Everyone,
I went this morning to have the second ECHO as it was suspected that I had PH on my first one. I had it done at the Hospital and was there for over one hour with two technicians and a Registrar looking on.
Apparently it took 5 weeks to get the result of my first ECHO and I was told by the Registrar today at the hospital that they didn't get a PA reading for my first echo that I had done at another place, so I don't know where my first rheumatologist got the PA reading of 50 from!!
The hospital I went to today to have the echo had the results of the first echo so they could make a comparison with this one. The registrar did say that my first echo was quite severe (on what area of the heart I'm not sure), and on this echo it seemed a lot better and was within normal limits (so they say) . They couldn't get a PA reading again. They told me that they can only get a PA reading on 40% of patients and only when a patient has a leaking valve can they then measure the PA.
This is the third day in a row that I can not get my pulse down from 100 BPM,
it ranges from 100 -121 Bpm when resting, and my SOB is only mild if I rest but if I walk around I get quite out of breath!
I was told today at the hospital that my rheumatologist would call me today (yeah right)
and it is now the evening and still haven't heard from her, so I give up!
Does anyone know what a normal pulse rate should be?
Any way thanks for listening and I hope that you all are pain free <_<
Have a good day

#2 susie54


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Posted 29 March 2007 - 01:00 AM

Hi Celia,

Sorry you are having problems with you heart. A normal resting! hearbeat is between 60-80 beats per minute. This is not to say yours is normal there. I have a slow hearbeat, sometimes too slow and my resting heart rate is aound 53. If I am moving around really fast , it can go up to 95 pretty easy.
I had trouble with PAH on an echo this past January. I had alot of shortness of breath, dizziness and racing heartbeat at times. The echo showed RVSP of 28-33 . borderline PH. THe rheumatologist said a right heart catheterization was the only way to really know. Anyway, things calmed down and so I have decided to wait. I hope you get out of this flare too. Take care. Susie54

#3 Heidi


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Posted 29 March 2007 - 01:30 AM

Hi Celia,

I am sorry that you still don't have a firm answer about the PA from the Echo. It is odd that your rheumatologist told you a number from the first one and yet the tecnicians said there was no number. I do hope your rheumatologist calls you soon and you get some answers. Is it possible that your pulse rate is high because you are anxious about the results of these tests?? I know it is easier said then done, but please try not to be too worried or anxious about all of this as that can definitely exacerbate your symptoms. Please do let us know when your rheumatologist calls and what is said.

Warm wishes,

#4 adensmore


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Posted 29 March 2007 - 02:25 AM

My pulse rate is high too. My resting rate is 121-131. They think my BMP is so high because I have GAVE (watermelon stomach). My stomach continues to slowly bleed even though I've had it cauterized. My body can't make enough red blood cells quickly enough to replace the one's I'm losing, so basically I'm low on blood. I had a transfusion, and my BPM came down to about 100. I think it may be time to have my stomach cauterized again or get another transfustion because my pulse is back up again.

I also have lung involvement so my heart is probably working harder to get my blood oxygenated.


#5 debonair susie

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Posted 29 March 2007 - 12:46 PM

celia, I hope you have gotten the results from your second ECHO... It's not easy, having to wait when you're left up in the air like this :unsure:
I wish all the best to you and keeping good thoughts for you!
Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#6 emmie


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Posted 29 March 2007 - 04:50 PM


I hope you get some answers soon. Will your rheumatologist refer you to a pulmonologist or cardiologist if the second ECHO is still questionable?

Take some good deep breaths and remember they are all really what did I call my neuro?? I can't remember now. I'm not kidding when I say my memory goes. Was it dip sticks? Any way...I'm thinking of you. Let us know how you are doing.

xoxo emmie