Hey everyone, I haven't posted in a while but I have a few things I am looking to get advice on. I am currently still without a diagnosis. I can't seem to find out if my rheumy even ran the centromere antibodies on me again... the only paperwork I see from his office says they were canceled with no reason given. I have a ton of things going on, right shoulder pain, right upper quadrant pain that is sharp at times and takes my breath, and it feels like I have to pee constantly. And I mean constantly! Oh, and it hurts to pee.
So, right now I am scheduled for MRI for my shoulder, which orthopedic doctor believes to be due to impingement.
I had a recent ultrasound of my liver that shows "increased echotexture that may be from fatty infiltration or fibrosis." GI just says I need to lose weight. :/
Meanwhile rheumy is extremely nice but really doesn't seem to be able to "put the pieces together" and figure me out. All he wants to do is run ANA tests, SED and CRP tests and since I am pretty normal (aside from elevated ANA) he shrugs it off and says to come back in six months. I am continuing to have hand swelling and pain, although the burning pain is pretty rare for me now, and my feet also hurt off and on similar to last summer. I have widespread muscle/joint pains that seem to come and go as they please but really make sleeping a challenge. I also have had cardiac testing done for palpatations and chest pains but nothing has really come of it.
I have a couple of questions for you all. First, do you think that my pains in my liver area may be related to this increased echotexture of the liver and would you request a biopsy for autoimmune hepatitis if you were in my shoes? Also, do you know if non-alcoholic fatty liver is associated with scleroderma at all? I seem to remember something about the liver and fibrosis... actually fibrosis in any organ, right?
Another thing, is this constant need to pee related possibly to scleroderma? Is this what IC feels like? It has been ongoing for more than a year, and when I went in for an ultrasound of my uterus over a year ago the tech told me that I hadn't emptied my bladder, although I had pee'd just before going in per their request... so I am retaining urine. Does it get more painful? And can it cause pain in the abdomen?
Last, how do you deal with rheumy who is extremely nice but doesn't seem to get it that I want to find out what is going on with me? And now? How do you deal with this politely? I have no other alternative rheumy in the whole state who will see me. The first one I saw said I had drug-induced lupus, but never followed up, and the second one set up an appointment time for me but then refused to see me. And going out of state isn't an option now, because I am on state Medicaid.
I am sure there is other stuff I have forgotten to ask but this is what I can think now, so tired.