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The Incredible Shrinking Mouth


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#1 peanut

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Posted 29 March 2007 - 11:30 AM

My mouth is shrinking. I can't open it as wide and I get breaks in the corners from trying to open it. I've been trying to stretch it out a little in the morning, but I don't know if it's helping. Is this something I should mention to my rheumatologist? I'm already on immunosuppressants… is there anything that can be done?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 barefut

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Posted 29 March 2007 - 12:06 PM

Welcome to the incredible shrinking mouth club!

Exercises do help at least a little, and a little is better than nothing. Not long ago I posted a list of exercises that I do.

Try doing a search for "mouth exercises." (not sure how that works tho)

Nothing can be done to stop it.

Here are some helpful tips though.

1. In order to make it look like you have lips, draw whatever size you like around existing lips with a lip liner and color them in with lipstick!

2. Smile a lot to hide the deep vertical lines around mouth :D

3. Work on those stretching exercises. Here are a few of them > :angry: > :o > :rolleyes: > <_< > (not kidding, really these are them!)

4. Use a mini vibrating masager on your face especially the jaw joint.

Take Care, Barefut

#3 Heidi

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Posted 29 March 2007 - 12:21 PM

Hi,

Here is the link to the previous thread where Barefut wrote out some of those mouth exercises.

Warm wishes,
Heidi

#4 Margaret

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Posted 29 March 2007 - 12:22 PM

Barefut ,

You're such a 'case'!!! How's the kiddo?

Margaret

#5 Sweet

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Posted 29 March 2007 - 12:27 PM

Hi Peanut,

I hear you all too well. I have a hard time at the dentist these days. YES mention it to your rheumatologist. I was just going to give you the thread on mouth exercises but saw that Heidi already did. I think they help.

Best to you,
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 RememberingToSmile

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Posted 29 March 2007 - 02:00 PM

I am sorry you are hurting - the recommended exercises seem silly, but they are so important to do.

Just an aside... I recently has some gum disease for the first time and began using a mouth rinse at night. My teeth are sensitive, so I only use a small amount and spend at least a minute working it through my mouth/teeth. I've always done several TMJ-related exercises, but working with the mouthwash has really loosened up a new set of muscles I didn't realize were tight.


Please let us know what your doctor recommends.

-RTS

#7 peanut

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Posted 30 March 2007 - 04:45 AM

Thanks everyone. My lips won’t stretch over my teeth. I do my mouth stretches as I drive and I must be a hilarious sight.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#8 Shelley Ensz

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Posted 30 March 2007 - 06:01 AM

Barefut, we are going to have to have you be our first official ISN Virtual Exercise Class Instructor.

We'll be the first ever to have Exercises by Emoticons. The funny thing is, those exercises actually work!

Another one is to say the entire alphabet with very exaggerated mouth movements. That uses every single muscle, and gives gentle stretches every which way.

And everyone should aways mention mouth shrinking, or worsening of the shrinking, to their primary doctor, rheumatologist, and hopefully their scleroderma expert, as well. Of course. ;)
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#9 Claudia-DR

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Posted 30 March 2007 - 07:29 AM

Hi girls!

I'll jump in to say ditto to Shelley. The exercises do help. I'm going to have another Restylane injection next week. That plus the facial exercises have really helped soften up my face.

Have a great week-end everybody!

Cheers,

Claudia

#10 RememberingToSmile

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Posted 30 March 2007 - 02:05 PM

Who cares what the other drivers think - driving time is a great time to get those face exercise in.

Good luck!

-RTS

#11 peanut

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Posted 02 April 2007 - 11:52 AM

I called my rheumatologist because now I have cracks in both corners of my mouth. He said it might scleroderma/small mouth related and that if need be I should see a dermatologist? What might a dermatologist do?

I told the nurse I'll wait it out. I'm not thrilled to have to see another doctor.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#12 nan

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Posted 02 April 2007 - 03:20 PM

Peanut,
My primary care physician gave me a prescription dental paste that really helps to soothe the pain and heal the cracks. The corners of my mouth crack open when I open my mouth and they bleed. I taste blood in my mouth a lot. Pretty gross! When I use the dental paste it seals the cracks.
Nan