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Seen The Rhuemy Today


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#1 Sam

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Posted 29 March 2007 - 01:04 PM

Well my doctor says I am doing good, he thinks most of my pain is from having fibro, which could be. We left it at that, he knows I don't like taking any more meds than what I am on. He knows if I need anything that I will email him. So he wants me to go have a PFT and Echo done soon. I didn't have on done last year. I know bad girl. I did promise him that I will get it done this time around. Oh we did talk about me working out and he thinks its a good idea and told me to take it easy. He did tell me that he thinks water theraphy would be better for me though. I had told him I was thinking of doing that again anyways. So that is where I am at now. Sam
Sam

#2 Sweet

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Posted 29 March 2007 - 01:18 PM

Sam,

Thanks so much for the update. Do let us know the results of your tests once you have them. Sorry to hear about the fibro, that's a tough one.

Also, let us know how the water therapy goes.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 Heidi

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Posted 29 March 2007 - 02:32 PM

Hi Sam,

Sounds like you had a good appointment with your rheumatologist. It is nice that he will listen to you about not wanting to take any more meds but knows that if things worsen and you need something, you will e-mail him. I do hope that the water therapy works well for you! Keep us posted.

Warm wishes,
Heidi

#4 RememberingToSmile

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Posted 29 March 2007 - 02:51 PM

Good luck - I admire those that are dealing with the Sclero , then the Fibro on top of it.... It's like an uneccessary kick while your down.

I was recovering from the polymyositis overlap and several falls when I saw the physical therapist to review the proper exercise plan. She'd never dealt with Sclero or myositis patients, but she knew arthritis and contracture prevention. Plus, I was fortunate and she came to the gym and showed me what to do, what to avoid (!), and how to perform the exercises properly. There are some staff at the gym who like to step in with advice, but I mostly ignore them.

When I started, it took me longer to get from the handicap spot to the equipment than it took to do the routine. Then over a couple months I worked up to 30 minutes plus stretching. I pushed too hard and am now sticking to a much shorter routine, no matter if it is a good day. If that goes well, I will slowly start to go more often.

One last thought - Therapy pools are great. I hope it works for you.

They have a water therapy pool at the gym I joined - but because I have extensive and still active skin involvement, I don't want to go in the water yet. I'll save it for next year. I love the people I meet there, though. The therapy pool classes attract so many great people with varying degrees of arthritis and disability. It's a good support group of its own.

One step at a time....
-RTS

#5 nan

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Posted 30 March 2007 - 03:41 AM

Sam,
I go to a therapy pool and love it. All I do is walk up and down the pool. There are a lot of neat people there and it is like a little support group. The pool temperature is usually 92 degrees and the air temperature is 83 degrees. I do wear latex gloves so my Raynaud's won't go wacky. I have also started wearing a knit hat to keep my head warm since there is about a 10 degrees difference between air and water. Yes, I am quite attractive in my swimsuit, latex gloves, and knit hat. But I don't care what I look like as long as I am comfortable. Good Luck!
Nan

#6 janey

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Posted 30 March 2007 - 06:20 AM

Sam,
It's so good to hear that you are doing good and that there may be a non-medicated solution for your pain. Here's our section on fibro and exercise and it does mention the effectiveness of warm water exercise. Hope you find a great place to exercise and it's just what you need to ease the pain.

Thanks for the update.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)