I am female and in my early forties. Last summer my proximal interphalangeal joints (PIP) joints on my pinky fingers started getting sore. I also have trouble swallowing but that has been for 10 plus years and I have had an endoscopy as well as manometry a few months ago which both came back normal.
Long story short I was sent to a rheumatologist for the joint pain. He ran my ANA which was 1:80 nucleolar...so barely positive. He ran additional antibody tests and I actually had 2 come back positive. Anti- PM/Scl and Anti-fibrillarin/u3rnp which was mildy positive at 5%. I have no other symptoms. No Raynauds or skin symptoms. I had a 3 month follow up with him and my ANA was negative when tested this time. However, I asked the rheumatologist what the positive antibodies meant and he said I might never go on to develop a disease and to only see him again if I develop rashes, skin symptoms or Raynauds.
I guess this is a wait and see if I'm a time bomb sort of situation. To anyone with a positive Anti-PM/Scl how did you symptoms first start and what was the time frame like?