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Nasty Cold Virus

Sinus Ear & larynx infection

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#1 Kathy D

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Posted 21 July 2014 - 08:47 PM

Woo hoo this is a doosey!  More than just a cold, it evolved (eeks!)

 

Dear husband caught our toddler's cold from 3 weeks ago.  Dear daughter gets frequent cold viruses, as expected since she is in pre-preschool 2 days a week and building her immune system.  She had a runny nose and some coughing and recovered quickly.......After suffering for a week he went to the doctor and was put on antibiotics.  He is not healed but feeling much better.

 

Meanwhile I caught it too.  Painful sinus headaches and chapped nose from blowing, it turned into a cough.  A week later I was quite hoarse.  Today, another week later, I finally made the taxing task of showering and dressing and make- up etc and went to the doctor.  3 different meds!?!  Also I have been developing sclero mouth for many years.  I found a particular brand of  lip balm that is soothing  for me, I have used it on and above my mouth for many years not knowing why my upper lip was so irritated.   I now have is slathered on my lips, upper lip skin and now nostrils too!   Thank you lip balm :)

 

Anyway I have totally lost my ability to talk.  I can squeek like a low chuckle, or whistle to get attention if needed but that's all.  Dear husband is getting irritated at me trying to wave at him or whistling to get his attention.   Dear daughter is now whispering anything I say as she mimics the only way I can communicate, by whispering!

 

On the happy side my dear mother (late 60's age now) baby sat and hosted a birthday party for my daughter last weekend.  What a great gift!   We now live 4 hours away from extended family; there were many guests, several of her cousins, and a loud fun happy birthday song for her!!  I can't tell you what a gift that was for my baby!  LOL, and me!  We are in the midst of a major home remodel and had to get things ready for the next stage so contractors could work.  Who am I kidding?.....I mostly watched while dear husband did the labor.  I am so lucky he understands, at the same time I get so frustrated I can't work side by side with him like I once did before sclero.

 

Either way this virus on top of debilitating fatigue and joint pain is no fun, but I am so grateful the cold virus will pass  :)  :)


Diffuse Scleroderma Diagnosed March 2009

#2 Joelf

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Posted 22 July 2014 - 05:21 AM

Hi Kathy,

 

Oh, how horrible for you to catch such a nasty cold virus; it must make you feel really rotten and I'm so sorry. :sorry:

 

Sadly for those of us with compromised immune systems, these viruses can be very debilitating and unpleasant and I do hope you will soon feel much better and regain the ability to talk! (Should I develop a virus that rendered me mute, I'm sure my husband would welcome a respite from my chatter, for a brief period!!  :emoticons-yes:  ;)  :lol: )

 

I do hope your daughter enjoyed her birthday party! :balloons:

 

Kind regards,


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#3 Kathy D

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Posted 28 July 2014 - 09:05 PM

It's quite hard to go without a voice for a few weeks.  It makes me value that I can still walk and move albeit so slow with too many rests periods in between.  Still no voice after 2 different antibiotics.  The doc now thinks is viral..... 2-3 weeks to be able to talk again and I am almost 2.5 weeks through.   Now I start worrying about other causes...

 

I can't help but look for a cause aside from my miracle toddler bringing home every virus from her preschool, (she is not ill and needs to build her immune system).  I do have wicked heartburn a lot of nights.  I have an acid reducer I take in the morning for a thickened esophagus but I have been raiding my husband's stock of over the counter acid reducer in the evening along with chalk antacids for a few months now.  I wonder if that is it?  I'd like to tell you it's heartburn from cough drops but it's been before this nasty cold virus.  I could possibly get an Rx for day and night acid reducer, but I had to do that in the past and it was really hard as it caused bowel issues....

 

On the other hand, dear husband that is not ill, has had a terrible time overcoming this virus or whatever too.  He caught it a week earlier than I did!  He is also on his second set of antibiotics, he finished them today and is half rid of it.

 

We have spent 3 weekends in a row splitting caring for toddler or sleeping.  Though I require more rest from autoimmune, with this I have been clocking sooooo many hours of sleep, from early night to next afternoon, while he watches toddler in the morning I feel like I have lost another part of my life beyond the mobility problems.   Not only am I too weak and fatigued to dance and sing with darling daughter for more than a few minutes at a time, now I sleep over half the day? Then he naps through the afternoon while I care for baby. 

 

We eat, then watch some TV and then go to bed again.  It's a mess and I need it to be over soon.  Everyone is frustrated hearing me whisper and not being able to understand me.  I am frustrated not being able to communicate.


Diffuse Scleroderma Diagnosed March 2009

#4 Sweet

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Posted 29 July 2014 - 12:25 PM

UGH! I'm so sorry. Sending healing vibes your way. 


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#5 Shelley Ensz

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Posted 01 August 2014 - 09:18 AM

Hi Kathy,

 

I'm sorry that your whole family is sick, including you. Unfortunately antibiotics don't do anything at all for viruses, as it looks like you've found out. 

 

Also, some heartburn medications do more harm than good, and mixing the various types or taking too much can backfire, sometimes even causing more heartburn when they wear off. So, when you get the chance (after you are better), review the situation with your doctor and develop a plan to first of all prevent heartburn, so that you aren't stuck in the mode of continually putting out the fire. Your laryngitis might be caused by reflux, or worsened by it, but heartburn probably wouldn't be causing your lassitude.  I suppose one way to tell is if your laryngitis continues on, well past all your other viral symptoms resolving. 

 

I'm very prone to getting laryngitis and it often lasts for one to two weeks. The worst possible thing you can do is try to whisper when you have it -- even though whispering might be all you are possibly capable of.  If you aren't already, it's time to start texting and emailing your hubby, or scratching out notes, even if he's sitting right next to you.   When they say rest your voice completely, they mean it, because it can further damage the vocal chords to use them when they are inflamed, making the laryngitis last longer.

 

I've heard that talking softly for a short while is okay with laryngitis, however, I've never managed to catch the sort which enables me to talk softly <sigh>.  I also treat mine by drinking plenty of fluids (tea with honey being a favorite as it soothes a bit), and lots of steam.

 

I'm thinking of you, and hoping that it turns the corner soon for you, and your whole family!

 

:emoticons-group-hug:


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Shelley Ensz
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#6 Kathy D

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Posted 03 August 2014 - 11:04 PM

Bummer, 16 days in with no voice, and 3 weeks with cold/sinus symptoms.  My poor nose is chapped & flaking at nostrils from blowing it so often.  Every morning I wake up with sinus pain.  Most mornings I am nauseated from my sinuses draining and post nasal drip.   Though not so pleasant, I have used a saline nasal wash a few times...but still sick.

 

I wonder if the plaquenil and prednisone are playing a role in duration and severity of this "cold".

 

I have so many phone calls to make but nobody can understand even my loudest whisper....New auto insurance and health insurance due to moving to new state, trying to communicate with the contractors remodeling our new house while we reside in the recreational vehicle this summer, calling the pharmacy to get prescriptions refilled, along with scheduling dd's 3 year checkup and talking with family....I even had a disagreement with dear husband last night about the location of our new furnace via text though we were only 4 feet apart from each other lol!!  (thanks for the tip Shelley :) )

 

I am getting back a sight vocal squeak here and there, (talking to toddler, or naughty dogs lol), so I have a ray of hope I have a voice again soon. 

 

Come 3 weeks on the dot if I still have no voice I am back at the doctors!  I'd like to further investigate now but she said it could be up to 3 weeks so I have to wait.

 

I have Echo and Mamm this week, I hope the techs understand whispering and charades... :)

 

We had people practicing gun shooting outside our property today (it's legal behind the fence) but they were not being safe.....too many bullets ricocheting too close for comfort, so dear husband called the sheriff (dear husband is an experienced, safe, and cautious gunshot).  Even though we live far from town a sheriff showed up.  I was so embarrassed to whisper at her and the deputy.  Thank goodness she understood my hand gestures that I needed to tell hubby they were here and scoop up our baby before greeting her!  (living in RV temporarily during home remodel, steep steps that are hard on joints especially with baby on hip).  The accompanying deputy gave her a Junior Sheriff sticker and she was thrilled. :)

 

I am still grieving my loss of mobility from  fatigue and joint pain, but losing my voice on top of that has left me in even more depression.  I was high energy, the life of the party and hard to keep up with or compete with be it career, home, and social life.  Even my green thumb for plants and breeding exotic tropical fish and other difficult hobbies I could excel.  I could do anything and do it well, better than most.  Now I only wish I could hold dd's hands longer than a minute to help her jump on the bed, and my career, social life, plants and aquariums are long gone.  I was attractive too, but that is a story for another time as I struggle to even bathe these days...  I am also disappointed in myself that when dd wakes up at night crying she calls for daddy and not me.  Evidence of how much dear husband has taken care of besides my needs.

 

I am reduced to relying on dear husband for almost everything, and he is overloaded.  Somethings gotta give!

 

I can offer some good news too.  On the bright side the RV has a lot of windows with beautiful views and natural sunlight (as will our remodeled home that was once dark).  And the RV has forced air heat which I have missed for 25 years, though our remodeled home will have a giant pellet stove for me and Mr. Raynaud's....  We also bought a giant window for the southern sun for me :)  Not great for the relentless winds in WY but very good for my mood.


Diffuse Scleroderma Diagnosed March 2009

#7 Kathy D

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Posted 03 August 2014 - 11:07 PM

Hi Kathy,

 

I'm sorry that your whole family is sick, including you. Unfortunately antibiotics don't do anything at all for viruses, as it looks like you've found out. 

 

Also, some heartburn medications do more harm than good, and mixing the various types or taking too much can backfire, sometimes even causing more heartburn when they wear off. So, when you get the chance (after you are better), review the situation with your doctor and develop a plan to first of all prevent heartburn, so that you aren't stuck in the mode of continually putting out the fire. Your laryngitis might be caused by reflux, or worsened by it, but heartburn probably wouldn't be causing your lassitude.  I suppose one way to tell is if your laryngitis continues on, well past all your other viral symptoms resolving. 

 

I'm very prone to getting laryngitis and it often lasts for one to two weeks. The worst possible thing you can do is try to whisper when you have it -- even though whispering might be all you are possibly capable of.  If you aren't already, it's time to start texting and emailing your hubby, or scratching out notes, even if he's sitting right next to you.   When they say rest your voice completely, they mean it, because it can further damage the vocal chords to use them when they are inflamed, making the laryngitis last longer.

 

I've heard that talking softly for a short while is okay with laryngitis, however, I've never managed to catch the sort which enables me to talk softly <sigh>.  I also treat mine by drinking plenty of fluids (tea with honey being a favorite as it soothes a bit), and lots of steam.

 

I'm thinking of you, and hoping that it turns the corner soon for you, and your whole family!

 

:emoticons-group-hug:

 

 

 

 

Thanks Shelley,

 

It sounds like unfortunately you understand the  how hard this is too.  I soo appreciate the empathy.


Diffuse Scleroderma Diagnosed March 2009

#8 Amanda Thorpe

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Posted 04 August 2014 - 03:01 PM

Hello KathyD

 

I am sorry it's so difficult for you all right now, the good news is that this will end, the not so good news, that something else will take its place but you will be better prepared, better able to withstand whatever that may be, having succeeded through your current difficulty.It's like riding a rollercoaster, sometimes up, sometimes down!

 

When it comes to the husband/wife dynamic, scleroderma brings out what is already there, whether good or bad and in you dynamic, much good is surfacing.

 

Take care


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